Whenever I am feeling discouraged, I make lists. I have a number of lists going simultaneously. I have one for my jewelry business, one for my jewelry e-commerce site (yet to be launched), I have another, which is a general To Do List and then there are the lists for Emma. Emma – research is one, Emma – goals, is another.
Several days ago, when I posted “What Now?” I was feeling particularly down. Out came the paper and pen. A list was created with the simple heading: Emma. Below the heading I began to make an action plan. As I worked on my list Emma appeared caring my Ipad.
“Mommy go to bed?” Emma asked.
“Do you want to sit in my bed with me, Em?” I asked.
“Yes. You have to ask Mommy. Mommy come to your bed with you?” She pulled on the sleeve of my robe. “Mommy can you come to my bed sit with you?”
“Yes. But you say – Mommy, can you come with me?” I said standing up.
“Mommy can I come with me,” Emma said, struggling with the ever elusive proper use of pronouns.
“Okay. Come on! Let’s go.” I said taking Emma’s hand.
Emma loves the Ipad app – Interactive Alphabet – ABC Flash Cards. She loves the music, which plays as she taps on different letters, each letter coming to life as she touches it. This app has become such a favorite, Emma requests it each night before she goes to bed.
“E. E IS FOR EGG,” the female voice said, when Emma tapped on the egg. She tapped again and watched it cracked open, a raw egg splatted down next to the first one.
“Hey Em,” I said, “What letter is that?” I asked pointing to the E. Emma said nothing and tapped on the A.
“A. A IS FOR APPLE,” the voice said.
Emma tapped on the picture of the apple and watched as the apple was eaten with accompanying crunching noises.
“What about this letter, Em? What letter is this?” I asked pointing to the B.
Emma ignored me and pressed the B. We continued in this way for a few more letters, with me watching her as she listened to a letter and then when asked what that letter was, she could not answer.
“Press U Em,” I said. Much to my surprise, Emma immediately pressed U.
“U. U IS FOR UMBRELLA,” the voice said.
“Hey Em, press P,” I said, holding my breath.
Without hesitation, Emma pressed the letter P.
“Em what letter is that?” I asked, excitement creeping into my voice.
Emma said nothing and pressed P again.
“P. P IS FOR PLANT,” the voice intoned, as Emma bopped her head up and down keeping time with the music.
“Okay, how about B? Press B, Em,” I said.
Sure enough, no hesitation, Emma tapped on the letter B.
“B. B IS FOR BEACH,” the voice said.
I repeated this with more than a dozen letters, picked at random with never a hesitation on Emma’s part, until I asked her, “What about W. Press W,” I said.
Emma held her finger over W and then tapped on V, just to the left of it.
“Em! That’s not W,” I said.
“No. Not W,” Emma said laughing.
“Come on Em. Press W,” I said.
Again Emma tapped on V and laughed.
“V. V IS FOR VOLCANO,” the voice said.
“Okay, what about R?” I asked. “Press R.”
Emma looked at me, smiled and tapped on Q, again the letter just to the left of R. After this had gone on for three or four more times, it was clear Emma was choosing the letter to the left on purpose. Each time she did so, she laughed. It reminded me of all those therapy sessions when I would be called in to discuss Emma’s progress. The puzzled therapist would then describe a session with Emma regarding something she thought Emma knew, only to question whether perhaps she didn’t.
“So it’s a processing issue,” Richard said later that night when I described my session with Emma.
“Yes, it’s really interesting,” I said. “She knows every letter of the alphabet if I ask her to point to it. I think she even knows almost all the sounds they make, but if I ask her to name a letter, she can’t.”
Of course the implications are exciting. Up to this point I have wondered whether Emma could learn to read or write. I wondered if the wiring in her brain was too jumbled to be able to, just as many autistic children who can read and write, cannot speak. The other night convinced me; reading and writing are achievable goals.
I spent several hours researching other apps for the Ipad and will be previewing a number of the free ones recommended by other parents of autistic children. In addition, I have watched the first video from Soma Mukhopadhyay regarding her Rapid Prompting Method and intend to watch the second tonight.
I looked at my list just now. Below the heading – EMMA – I had written Help Emma with Reading and below that Help Emma with Writing.
Maybe, just maybe, I will one day be able to cross those off my list, just as I have been able to cross off: Toileting & Bedwetting.
By the way, have I mentioned Emma slept the last TWO nights in her own bed without waking anyone, coming into our room at 6:30AM and 6:45AM?