Tag Archives: New York City

An Ode To Richard ~ On His Birthday

Richard’s birthday falls on Valentine’s day.  We met on Christmas day at a Christmas party.  I didn’t know many of the people at the party, but parlor games were being played (always a good ice breaker) and Richard, no matter who he was teamed up with, was winning.  I remember seeing him seated on a couch near the window that looked out on to the snow drifts on 8th Avenue.  I remember how intense he was and focused.  He was funny, in a dry, smart kind of way.  He was  one of those people who doesn’t seem to really care about what others think, a bit of a rebel, certainly someone who doesn’t take orders from others.  (Have I mentioned that people say I can be a little “bossy”?  Not that there’s any truth to that mind you.  I just have really good ideas about how things should be done.)  I remember the way he looked at me.  I remember saying to him in front of everyone there, “Are you flirting with me?  I thought you were flirting…”  He grinned at me, with those dimples of his and answered, “Well I was flirting, but I was also asking you a question.”

I can’t remember the question any more.

Right from the beginning ours was not a traditional nor particularly conventional courtship, if you can even call it that.  We went out with groups of friends a few times, always making sure we sat together, always pretty much ignoring everyone else.  We had planned on going to a New Year’s Eve party together, but Richard got the flu, so I went alone.   The next day I received a call from my mother that my father wasn’t well.  I grabbed my wallet, a toothbrush and a pair of underwear, (I’m serious and yes it was a bizarre choice, particularly as I brought nothing else) hailed a cab and caught the first airplane I could get, out west.  Those were the days when you could show up at the airport, without a driver’s license and take a plane where ever you felt like going.  By that night I was at my parent’s house.  Two days later my father died.  Richard and I spent at least an hour every night on the phone.  He held my virtual hand.  He said all the right things, he listened, he talked, I listened.  We talked about death and life and our childhoods and everything in between.  There were lots of tears and emotions.

A week later I returned to New York in love with a man I had spent almost no time with alone.  But I knew the essentials.  I knew he was kind.  I knew he was smart and funny and wise and ambitious and curious and utterly unconventional.  I knew he was a tad quirky.  I knew he had strong opinions, was a bit esoteric, had some weird ideas about aliens and wanted more than anything to see a UFO in his lifetime.  I knew he had a tough childhood and a past that was complicated and I knew we were both in for the ride of a lifetime.  I knew it wasn’t going to necessarily be an easy relationship,  we are both far too feisty, opinionated and sensitive for that, but I knew this was a man who would challenge me and I wanted and needed to be challenged.  That hasn’t changed.

Over the years we have learned to give each other slack, to not pick apart every perceived slight, we have learned to weather our differences, we’ve learned to respect our marriage even when we’re angry with each other and don’t agree.  We’ve learned the art of letting go, not needing to control so much, it’s definitely a work in progress.  We’ve learned a great many things from each other and we keep learning.  We have two beautiful, quirky kids whom we love and adore.  We do not own them.  We do not mistaken our children as extensions of ourselves.  We do not mistaken each other as extensions or expressions of ourselves.  We are a family, a beautifully diverse, vibrant family who respect one another and give each other the space each needs to (hopefully) grow and flourish.  Richard reminds me to “take it down a notch” when I become too fixated on something that is not within my power to change, he encourages me to fight and change the things I can, he is always there for me, supporting me and cheering me on.  He believes in me even when I don’t believe in myself.  He believes in our children with the same dedication and passion.

I can honestly say I love him even more today than when I first fell in love with him on that snowy, wintry Christmas day so long ago now.

Happy Birthday dear Richard!

Richard – then

A young Richard Long

Richard – Now

*Richard

The Joy Of Communicating Without Words

This morning it was 17 degrees fahrenheit, but with the wind chill it felt as though it were 5 here in Manhattan, this was according to my “The Weather Channel” iPhone app.  Because of the ongoing New York City school bus strike and because my husband is SuperDad minus the voluminous cape and lycra tights, Richard has been taking Emma to school each morning for the past ten days.  But this morning it was my turn to step up to the plate.

7:30AM this morning

Me:  Okay Em.  So here’s the deal.  I’m going to take you to school today, but Daddy told me it’s tough getting a cab, so we may have to walk.

Em:  Take taxi with Mommy to school.

Me:  Well, we’ll try to get a taxi outside our building, but if we can’t get one right away, we’re going to walk.

Em:  No, I don’t want to walk.  Take taxi.  Just you and me.

Me:  Em, we’re going to try to get one, but if we can’t we’re going to walk.

Em:  Nodding her head.  Together.

8:15AM

After trying for several futile minutes to hail a taxi we began to walk to Emma’s school.  The sidewalks were crowded with parents and children.  As Emma and I made our way in the cold, Emma began to make a loud singing like sound.  It wasn’t a song, more like one line of a song, sung loudly.  People turned to look at her.  At first I just continued to walk next to her, my hands tucked into the pockets of my coat for added warmth while Emma repeated the same song-like refrain loudly.  A few people stared.  Em linked her arm through mine and sang again.  I looked over at her, ignoring the curious looks from those we passed and sang back, but in a slightly different pitch.  She smiled and did it again.  I echoed her.  She laughed.  As we continued along toward her school in this way I noticed a few people smiling as they walked by us.  Once at an intersection Emma stopped “singing” and instead winked at me.  I winked back.  When we eventually arrived at her school, Emma turned to me and said, “Bye bye Mommy.  Had so much fun walking to school with Mommy!”

Yup.  Me too.

Emma – 2003

Em2003

That Wasn’t A Question

Last night.  I’m at my computer writing.  Emma walks past me.

Em:  Have cereal and toast?

Me:  Em, you just had dinner a little while ago.

Em:  Time for cereal and toast?

Richard:  What?  No Em.  You just ate.

Em:  Emma’s hungry.   Have cereal and toast.

It took three times, but then I understood.  This wasn’t a question, this was a statement.

And with that, Emma went into the kitchen and fixed herself dinner #2 – cereal and toast, while Richard and I looked at each other and laughed.  

Evening light – New York City, 2013

Light

Less Than A Year Ago…

If I don’t immediately take notes during and after my typing sessions with Emma, I would wonder whether the words she typed were a figment of my imagination. There is something almost magical seeing and reading the words typed from someone who does not, or does not easily, communicate with spoken language.  It reminds me of the time I went to a lecture given by Soma Mukhopadhyay with her autistic son, Tito who began answering questions from the audience.  Tito is non-speaking and has a great many stims, yet translates his beautifully eloquent, poetic  thoughts into words and has no problem answering any question posed.  It’s often a disconnect for the neurotypical person watching someone who isn’t able to verbally say what they are thinking, yet has no trouble writing their thoughts, which in no way match the presumptions we, NTs tend to make.  If you’ve never witnessed something like this, it can be pretty mind-blowing, which says more about the limitations of neurotypical thinking and the constraints we unintentionally place on others who seem different from us than anything else.

Last night I began Emma’s session with a question.  It’s the same question I always ask her.  “Hey Em, how about after you sing this song we do a typing session together?”  And Emma answered, as she does every time I ask her this question, “Yeah!  Typing session with Mommy!”  Emma’s excitement, in and of itself, makes me incredibly happy.  That she’s interested and (I think) looks forward to our sessions as much as I do, makes me believe we are on the right track.  When we went into the room, now dubbed, “Emma’s office” I tried to think of a question it seemed likely Emma would know the answer to, but that if she typed it out, I would be surprised.  As we are leaving soon to visit her Granma for the holidays, I said, “When we fly to Granma’s we have to first take a taxi to an airport.  What’s the name of the airport we usually go to?”  Without hesitation, Emma typed, “La guardia”.  Wow!  Just wow!  I then asked, “There’s another airport near La Guardia, we don’t usually fly out of, but what’s the name of it?”  Emma, again, without hesitation, typed, “kennedy”.  Whoa!   Then I threw her, what I thought would be, a curve ball and asked, “When we fly out of La Guardia we always take the same airline to visit Granma.  What’s the name of the airline we always take?”  Emma wrote “United”.   EEEEEE!!!!!  Snoopy dance.  Give me a moment while I hyperventilate.  Whooooo, whooooo.

Emma went on to tell me what state and city we live in, the name of the state we were flying to and when I asked, “What’s another name for the city we live in?  It starts with an M?”  Em immediately typed “Manhattan” though she forgot the h and one of the ts.  I followed up with, “And what’s the neighborhood we live in?”  Emma, again without hesitation, typed, “Chelsea.”  Taking another deep breath.  For those of you who are doubting what I’m writing, I understand.  Really.  I do.  As I wrote above, I actually had to take notes during our session, because I knew I would come away as if in a dream.  (Ibby suggested I record our sessions together and I keep forgetting to do that, but I have to remember to from now on.)  That’s what it feels like, a dream.  I absolutely believe in my daughter’s competence.  I believe she is far more competent than most people who come into contact with her do.  I do not for a second doubt that she has a busy, complicated and fascinating mind, filled with thoughts, ideas and knowledge I can only guess at.  But to know this, to believe this, is different from being shown this.  I don’t mean to offend any of you reading this who are non-speaking and communicate by typing.  I don’t mean to offend, really I don’t.  I hope that were Emma to ever read this she will understand what I’m trying to say.  This is not about Emma’s limitations, either intellectual or otherwise, this is about my own.

For all you neurotypicals who can speak, humor me for a moment.  Think about how you would feel if you could not speak.  Think about all the things you know, but couldn’t say.  Now imagine if you were told something simple, like the city and state where you lived over and over, repeatedly, day after day.  Just think about this for a second.  Close your eyes and try to imagine what it would be like to not be able to speak.  Imagine that well-meaning people tried to help you speak through repetition and you were not allowed to move on until you were able to say these things being “taught” aloud.  Imagine how you would feel were you never able to say these things, so you weren’t allowed to move on.  It was assumed that because you couldn’t say them, you must not KNOW them. And yet, all this time…   all this time you really did know these things.  Not only did you know these things, but you knew so much more.  But no one believed that you did.  No one treated you as though you did.  Less than a year ago I assumed Emma did not know.  Less than a year ago I assumed Emma did not understand.

Less than a year ago…

Emma waiting for the school bus with her string

*Em

“Burden”? I Don’t Think So.

The roller coaster I call “autism” is less actual and more a description of my emotions, expectations and judgments surrounding specific things such as communication differences, internal issues, pain perception, sensory issues and the different ways in which Emma takes in information as opposed to the way my (more often than not) non-autistic brain works.  (My friend, AspieKid calls brains like mine NT-NOS, which I think is a hilarious and fitting acronym.) It is a “roller coaster” of my own design and construct.  A roller coaster being an accurate description of my emotional state, something I’ve grappled with my entire life and certainly well before I ever met my husband and had children.  Suggesting “autism” is the root cause for those pre-existing twists and turns my emotions tend to take or pinning the psychological upheavals I’m experiencing onto “autism” is not only wrong, it’s dishonest.

The truth is, I’ve always been a bit high-strung.  I live in New York City, a city whose inhabitants wear their neuroses proudly.  Neuroses in New York city are treated the way a runny nose is looked upon in the mid-west.  No big deal.  New Yorkers have melt downs at the drop of a hat.  I’ve seen fist fights break out between grown men in the middle of an intersection because of a perceived insult, people routinely scream at each other and cut each other off while driving.  Moms pushing babies and toddlers in Hummer-sized strollers wield them like tanks plowing a path for themselves along clogged sidewalks like Moses parting the Red Sea.  People think nothing of getting into loud arguments with lovers, neighbors, friends and strangers in the middle of the sidewalk, forcing pedestrians to walk around them.  It’s a city of ids and super egos.  It’s a city that is (perhaps) an exaggerated version of what one sees anywhere in the world.  People are capable of some pretty dreadful behavior.  Add a child with a different neurology to that already fragile, high-strung mix and you’re going to get some interesting results.  To then conclude that autism is to blame, defies all logic.  No one would do that.  Yet people blame their bad behavior, their inability to cope, their sadness, depression and general irritability on their autistic child all the time.

Suddenly it’s autism and Autistic people who are a “burden” to society.  Autism isn’t a “burden”.  It’s the negative views of autism, it’s the autism = untold horror, it’s the perception of autism and the lack of understanding and services, the lack of training and programs in our schools so they can help our Autistic children learn in a way that will ensure they flourish.  The “burden” is not our Autistic child on society.  The “burden” is the lack of support and adequate help families need so they can better support their child, giving them the sort of assistance  they need to thrive and flourish, a child who will one day become an Autistic adult and, in an ideal world, an active member of society.  We have to move away from this idea of Autism = burden.  Autism = tragedy.  Autism = _______ fill in the blank with a negative word.  We need to abandon our preconceived notions of what a non-speaking Autistic child cannot do.  We need to open our minds to the idea that our children are capable of far more than we may believe or can fathom.  We need to begin looking at what is good about Autism and the countless ways in which Autistic people can and do contribute to this world.  We need to remove the stigma and negativity and replace it with a more balanced and yes, positive view.

Imagine a world that includes Autistic people, accommodates Autistic people and stops shunning, restraining and abusing them.  A world in which it is not okay to have seclusion rooms and restraints, where a non-speaking person is treated with respect and without prejudice and where it is not assumed that because they do not speak they have nothing to say.  A world where people finally understand the burden isn’t the Autistic person, whether child or adult, it’s the lack of services, the judgments and the scare tactics being used.   Autism is big business and there is no better way to ensure dollars continue to pour in than when we are terrified. Let’s change that.

Having a child is joyful, exhausting, frustrating and the single most extraordinary experience a human being can have.  Having an Autistic child is joyful, exhausting, frustrating and the single most extraordinary experience a human being can have.   One can say that about a great many things in this life.  Let’s stop blaming Autism and our Autistic children for the ills of the world and the bad behavior displayed by people.

Emma and her infectious laugh

Em

What Makes You Happy?

Happiness is….

My husband

*Richard

Our son

Nic

Em

A flamingo

Our fabulous kitty

Merlin and the Gator

This…

Nicw:dogs

and this…

Emonherpogostick
the ranch…

6AM

7:00 AM in New York City

AMin NYC

And this… this one’s for you, Brenda

Ilovemyshoes
and this… Angie, love and kisses… (Em took this and it’s pretty blurry, but you get the idea!)

kisses

What makes you happy?

Related articles

“Hurricane’s Suck, Have A Croissant”

Processing…  I haven’t.  There are still too many people who are without power, whose homes have been destroyed, too many people who continue to have no heat, no hot water or any water at all, too many displaced people, too many who have lost so much….  How does one process this?

Nic had nightmares last night about a zombie apocalypse where he was the lone survivor.  Emma is perseverating more than usual; her stims have gotten noticeably worse; her scripting more pronounced.  I watched her yesterday as she did her Sunday morning DJ routine, listening to all her favorite songs, singing and dancing, losing herself in the music and felt both grateful for all we have and utterly exhausted.  I slept seven and half hours last night and yet feel as though it were 5.  I am feeling fragile particularly sensitive and emotional, and we were the lucky ones.  We have power, heat, hot water, a home that is undamaged, everything’s back to “normal” and yet it isn’t.  I don’t know what normal means anymore.  Where do we go from here?  How do we process this?

On Friday I went downtown and took photographs.  The lighting wasn’t great, it was impossible to capture the mood or what it felt like to walk along empty streets where the only lights came from headlights on busses, taxis and those who still had enough gas in their cars to get around.  I couldn’t photograph the group of young women weeping in the street or the man looking for his father whom he had not heard from in four days or the old woman painstakingly climbing the stairs of her unlit building, her pug tugging on its leash, urging her upwards into the darkness or the faces of all those people I passed obsessively checking their dead cell phones, trudging north with the hope they might find an available electrical socket that would breathe life into it.  I’m not a skilled enough photographer to be able to capture any of that.  (I’ve provided a couple of links to some professional photographers who were though.)  But I did get a few images that at least document the storm and our resilience…

One of the many Chelsea art galleries whose flooded basement held art work. 

An intrepid New Yorker who found a way to stay open despite the power outage downtown

Powering up on 7th Avenue

The “Doll House” on 8th Avenue

Kindness on 14th Street

Pizza by candle light

Emma wasn’t able to go trick or treating, but she still dressed as a butterfly on October 31st

The Statue of Liberty during the storm

We are capable of so much.

Be grateful.

I am.

A City Divided

Today is the first morning I’ve had the time, the electrical power and the energy to write a post.  It’s with some horror that I read my last post.  Who knew Sandy would cause so much devastation and damage?  Evidently  pretty much everyone, well except us, it turns out…  I don’t think I need to say a whole lot more here, other than we were lucky and are fine.  We had a huge stock of batteries, thanks to a tendency to overstock supplies and having children with battery operated devices, I even found a solar-powered radio/flashlight my brother had sent me a few years ago after the last blackout and a drawer full of candles and flashlights.  My mother periodically called with updates and my brother sent text messages with the latest news.

A good friend who lives above 26th Street (and therefore had power) was kind enough to open her home to many of us without.  It took hours to power up our devices, but at least we weren’t standing in line at one of the many delis and stores north of 25th Street who had brought out power cords allowing as many people as possible to power up.

All is dark, including the traffic lights south of 25th Street


Monday morning as we took the children west to survey the damage in our now dark world, we attempted to cross 8th Avenue, but had to wait as cars raced past taking advantage of the power outage and dark traffic lights, never breaking despite the fact we were with two children.  For those cars on the cross streets waiting, hoping someone would slow down enough to let them through, it was a lesson in patience and a stark reminder of how badly people can behave given the opportunity.

One of many buildings in Chelsea near the West Side Highway

Our building still has water, it’s only now running out, other buildings are not as fortunate.  We also were fortunate enough to have a gas stove, which means we are able to heat water and even made pancakes for Emma one morning.  By the third day, Emma’s stress level had become noticeably worse.  (As had mine.) Perseveration, stimming and echolaic speech had all worsened.   I started looking into hotel rooms for us already on Monday while waiting for our phones to power up at my friend’s home, but couldn’t believe when I saw a “Budget Hotel” in midtown charging over twelve hundred dollars per night for a room.  I probably could have booked something had I thought to (and most hotels were not price gouging), but by Tuesday there were almost no rooms left and by the time we seriously began looking on Wednesday we found only one hotel with a room available, which we booked, only to learn that it had been evacuated because of the crane in Midtown that forced a number of blocks to shut down.

Richard took matters into his own hands and called my cousins who welcomed us into their beautiful home uptown.  We are grateful to have somewhere to go and relatives who were willing to take us in, people who were kind enough to open their doors and had spare bedrooms to accommodate us.  Meanwhile Nic went to his friend’s house in Brooklyn, where he is playing one endless marathon video game of who knows what with his friend.  We miss him, but are relieved to know he’s being taken care of and is happy.

I wrote the following and posted it on my Facebook page last night:  “It’s hard to capture a visual of A Tale of Two Cities: Downtown without power, Uptown life continues. North of 26th Street where there is power, lines of people wait to use an electrical plug to power up their cell phone, below 26th Street there is no power, many buildings are without water now, others will be without water soon. Guys are hawking C & D batteries on the street corners, one guy has a sign saying, “We sell CANDLES” Large flashlights are a hot commodity. And yet… just a few blocks north people are watching the news of devastation on their flat screen TVs. Two worlds divided by electrical haves and have nots.”

To be without electrical power is to literally be without power.  Those who are above 25th Street, a purely arbitrary division are able to listen to the news or not, make phone calls, take showers, fix nice meals for their families, choose to open their homes, help people if they decide to, but those south of 25th do not have these choices.  It is surreal.  Those without power who had the means and the wherewithal to book hotel rooms on Monday did so.  The decision to continue with the New York City marathon this Sunday was a stark example of the massive disconnect that has occurred in this city.  That officials were blithely holding press conferences defending this decision while people are trying desperately to locate family members they haven’t heard from who live in the southern parts of the city is  just one more example of how surreal things have gotten here in New York City.

*I am one of the people who feels it is insulting to carry on with the marathon, exacerbating the traffic jams, reducing the numbers of available hotel rooms, a symbolic thumbing of their noses at all those who have not showered, had something hot to drink or eat, are without heat, water, light or have been evacuated.  I see the people running along the streets, weaving in and out of the traffic grid lock and I can only assume, as they head south, that they will eventually head back north to a hot shower.  Yet another example of the difference a little electricity makes.

*This post was written before we lost wi-fi this morning and at the time the marathon had not been canceled.

Related articles

Awaiting the Storm

If you listen to the news, which I haven’t but Richard, in an uncharacteristic display of interest regarding the weather, has been keeping abreast of the latest news by reading updates on the NYTimes online, you already know Hurricane Sandy is heading inland and may or may not hit New York City at some unknown point…  it’s hard to say. Meanwhile, everything is shut. All the stores are closed, all public transportation has screeched to a halt, friends of ours who are in “Zone A” have had the boilers in their building shut off since yesterday evening, some others have been evacuated, and yet, other than the occasional breeze and light sprinkle, there is nothing to suggest anything is amiss.

On Saturday as Nic and I did our weekly grocery shopping run, Nic commented on the long lines. The typical four-hour window given for delivery of one’s groceries had been suspended and other than thinking it strange that so many more people were out getting groceries, it didn’t occur to me to be concerned.  It has to be said, we do not watch the news on television and my reading of the NYTimes online is topic specific.  When Nic asked why so many people were grocery shopping I said something about how it was always like this on Saturdays and then went into a lengthy explanation about typical Monday through Friday work weeks and how it made sense that Saturday was a good day for grocery shopping. By the glazed expression on my eldest child’s face, I’m pretty sure I lost him after the first 30 seconds. Looking back, the incredulous expression on the woman’s face directly behind us now makes sense and I feel a little saddened to realize it was not a look of awe at my brilliant analysis of the shopping habits of fellow New Yorkers.

Last night I explained to Emma that there was a big storm headed our way and because of it, school would be closed and that there might be heavy rain during the night, but that we were all going to be safe.  I was a bit more concerned that the changing air pressure might wake her in the night, causing her pain and upset.  When she woke this morning and came running into our room, I said, “Em, has it started raining yet?”  She said, “Rain, lightning and thunder!”

“Really?” I said, peering out into the darkness.  “I don’t hear any rain.”

“It’s raining.  No school,” Emma said, with the kind of unerring certainty that does not invite argument.   Then she pulled the bed sheets up over her head.

I asked Em if she wanted to go up on the roof to see first hand what the weather was like.  I grabbed my camera and rain gear .  “Oh honey,” Richard said as he watched me zip up my rain jacket, “you’re going to document the storm,” he wiggled his fingers to make quotation marks.  “I love that.”

“It hasn’t hit us yet,” I told him.  “It might.  Later.  You never know.  They’re saying 95 mile per hour winds and 10 foot waves.  Maybe I’ll take the kids to the river later,” I announced.

“I love that you’re going out to record the weather and not hunkering down into fear-bomb-shelter mode,” he looked at me with what I’m pretty sure can only be described as pure, unadulterated, adoration and admiration. (I am convinced I’m reading his look correctly and NOT the way I completely misinterpreted the look of the woman in the grocery store.  Of course, I have been wrong before…)

Em on the roof just now in appropriate, pre-Sandy, attire

Finding That Sticky, Messy Area Between Perfection and Despair

“Compare Emma to Emma.  Don’t ever compare her to another child.”  This was said to me years ago by someone whose name and face elude me.  I was reminded of their suggestion this morning as I rode the subway to my studio and read the chapter by Lucy Blackman from Douglas Biklen’s terrific, must-read book, Autism and the Myth of the Person Alone  – “That is  best illustrated by asking each reader to describe the cultural or emotional characteristics of their own sex, whether man or woman, without any reference to the opposite, not even by implication, as if you were completely unaware that there is another set of options available.”

As the subway careened along beneath the streets of Manhattan, I reflected on this idea of not comparing Emma to anyone else or even to an abstract idea of anyone else.  What if I didn’t compare her at all?   “…without any reference to the opposite, not even by implication…”  What if I saw Emma purely as Emma?  “..as if you were completely unaware that there is another set of options available.”  What if I pushed out of my mind all those evaluations, the reams of “reports” the specialist’s conclusions, the pages and pages of “information” gathered over the last eight years?  What if all of it, every last word was meaningless?  What if I emptied our file cabinet of all that and started anew?

We live in a culture of comparing.  We look to our neighbor and envy their garden or, as happens in Manhattan, how many square feet their apartment is. We salivate over other’s imagined life, we covet that which we do not have and may never have, we pore over the lugubrious details of fallen celebrities and the train wreck of their lives, we gawk at the photos of dimpled hips, bellies, thighs occupying pages upon pages in magazines we may never purchase while in line at the supermarket, relieved that we are not the only ones whose bodies are not the chiseled, polished, perfection obtained through that impossible combination of genetics and a willingness to give over hours of our lives to a gym.  Yet we still feel embarrassment and shame when we go to the beach and uncover ourselves.

I spent a great many years perfecting just this sort of thinking.  I spent far too many years feeling alternately “less than” and “better than”.  Oddly there was equal measure of shame in both and yet I couldn’t figure out how to extricate myself.  It was one or the other, that sticky, messy area between those two points was much harder to occupy.  But it is that area I long to find my place in.  It is exactly that middle ground I now find myself reaching for.  “…as if you were completely unaware that there is another set of options available.”  That is what I strive for, when I think about and interact with Emma, but also in every area of my life.

“Compare and despair” is something I have heard people say.  I can illustrate this saying with countless examples from my life and yet, even now, knowing what I know, the temptation to compare is seductive.  How does it serve me?  This is the question I know to ask.  And I have the answer to this.  It doesn’t, but it is a habit.  Thankfully I am learning to stop myself when I catch myself comparing.  What I am coming to realize is, comparing is my knee jerk response to stress.  It is where I go when I’m tired.  It’s my default setting for when I’m overwhelmed, hungry, sad or just confused.  Repetition is how we acquire skill.  Repetition is how we undo learned behavior.  When I compare Emma to Emma I see tremendous progress, I see possibilities, I see limitlessness, I see the beauty in the small steps taken, I see a kind of poetry in her growth.  Challenge becomes subjective, goals are no longer solid lines but instead shimmery bands of light, something one moves in and out of, no longer a mountain to climb, but rather a place to visit and then move on.

How do I stop comparing my child?  By seeing her through a lens of wonder and curiosity.  When I am able to accomplish this, I have found true bliss.  A blissfulness Emma innately occupies and patiently awaits me.

Emma running through sprinklers outside the Museum of Natural History

SpyGear, Flamingos, Freedom Tower And My Handsome Husband

Update:  Emma arrived safely at her new school via the school bus this morning!  The tracking device, surveillance cameras, James Bond style secret pen with microphone hidden in her backpack, spy cam disguised as trendy sunglasses and stress relieving songs of the humpback Whale downloaded (for me) worked wonders…  (Just kidding)

I encouraged Emma to rehearse with me this morning what she might say if the bus didn’t take her to the correct school again and Em, never one to pass up an opportunity to perform, said in a loud, clear voice, while dramatically gesticulating, “You’re going the wrong way!  You have to go this way!  I go to new school..  I go to ______  (name of her new school)!”  Then she beamed at me as I applauded and cheered.

Yay Emma!

Emma in her favorite Flamingo costume last night on the roof

Playing with Daddy who donned Emma’s hat as though it were a feathered pith helmet.  Can we all just gasp in appreciation at Emma’s magenta tail feathers! 

The light was so beautiful last night – A glimpse of the Empire State Building

And to the South, Construction of Freedom Tower Continues..

And finally my handsome husband…  who was engaged in an animated conversation with our son, Nic (off camera) about his, just released and new favorite, video game – Borderlands2

Belly Go Bang-Bang

We are flying back to New York today.  Last night as I was packing Emma called out for me.  “Mommy!  Mommy!”  Em has only just begun to do this – call our name if she wants us or is wondering where we are.  It’s such a small thing, but every time she does it, my heart skips a beat.  I’ve even caught myself holding my breath, waiting to see if she’ll do it again.  It brings me such joy.  “Mommy!”  she called, then waited to hear my answer.  “Hey Em!  I’m downstairs!” I called to her.  “Mommy’s downstairs,” I could hear her saying as she came down to find me.  (Another interruption. I know, but I can’t help it.)  The fact that Emma came downstairs to find me is another thing that is fairly new.  I could hear her footsteps coming down the stairs.  “Have to go see Mommy nurse,” Emma said as she plopped into a chair near me.

“Oh no Em.  What’s wrong?”

“Belly go bang-bang,” Emma said, bending over and holding her stomach.  (This is what Em typically says when she’s about to throw up.)  “You cannot punch.  Have to go to the hospital.  Go see hospital nurse.”

I looked at her and went through the following thought process – Oh shit.  Could it be her appendix?  What side is she holding?  No, she’s holding the middle of her stomach, this can’t be her appendix, but what if it’s something serious?  An ulcer, a tumor?  Em doesn’t usually complain about aches and pains unless it’s serious.  I then calculated how long it would take to drive her to the hospital, how long we would have to wait, how long it would take to get an x-ray, and then see an actual doctor to tell us the results…  Finally having run through the entire scenario I decided I needed more information.  

“Em.  Where does it hurt exactly?”

She pointed to the middle of her stomach.  “Hurts here.  Emma’s sick.  Take temperature?”  I felt her forehead, which felt fine.  “I’m cold.  Emma has to stay home.” She wrapped her arms around herself and then said, “Emma can’t go to new school.”  She frowned and pouted, while nodding her head.  “I know, I know.  Emma’s sick.  Emma has to stay home with Mommy.”

“Oh Emmy.”  I reached my arms out to her.  She came over to me and rested her head on my shoulder.  “I know.  Emma doesn’t feel well,” she said.

Just as she said this Richard’s voice could be heard calling out, “Hey Em!  Want to go for a ride on the 4-Wheeler?”

Em jumped up from the chair and called back, “Yes!”  Then raced out the door and bounded up the stairs.

Anxiety.  Stress.  Fear.  And that’s just what I’m feeling…  For Em it’s got to be even more complicated.

Em on the 4-wheeler

The Aftermath

Richard and I returned from Jerusalem and the icare4autism conference Friday evening.  It was so good to see Emma again after being away for an entire week. The three of us spent the weekend in NYC and then flew to Colorado where we were reunited with Nic (whom I haven’t seen in a month) looked after by my doting and wonderful mother.  I have at least three hours of recordings from the conference to transcribe.  I must write about the conference in greater detail, I have a great deal of work to do for my business, the one that actually brings in money, and I want and need to spend time with my family.  I’m tired.  That’s what I keep thinking.  But there’s more to it than that and I haven’t figured out yet what that exactly means.  There’s panic.  How am I going to get everything done?  But there’s something else, something I haven’t put my finger on yet.

It’s 4 AM (I’ve been up since 3) but you could tell me it was 1 in the afternoon and I’m so turned around I’d just nod my head.  So rather than say any more I’ll end with this – a little scene from last night.

Em:  Play duck, duck, goose?

Me:  Yeah, okay.

Em:  With you (points to me) and me (points to herself) and Nicky and Daddy and Granma?

My mother: What’s duck, duck, goose?

Nic:  You’ll see.

Everyone sits at the dining room table as Emma stands waiting. 

Em:  (Going around the table, while placing her hand on each person’s head)  Snow.  Snow.  Snow.  Snow.

My mother:  Should I do something?

Nic:  No Granma.  You have to wait.  She’ll say something different.

Em:  (Grinning, pats Granma on the head)  Raining!

Richard:  Oh no!  Emmy you have to pick someone else, Granma can’t run.

My mother:  (Looking horrified) I’m suppose to run?

Me:  (Laughing)  Yes, you’re suppose to run after her.

Em: (With mischievous grin)  Granma run?

Richard:  No, Emmy pick someone else, Granma can’t run.

Em: (Continues to go around the table) Snow. Snow.  (Puts hand on Richard’s head and hesitates.  Then shouts)  Raining!

This game continued for several rounds with Emma occasionally directing when things weren’t going as she felt they should.

Em:  Okay.  Last time for duck, duck, goose.  

When she’d finished going around the table, picked someone and after lots of screaming and laughing my mother said, “That was a great game!”

Em:  Play again?  (Looks around the table grinning)  Okay, okay, later.  Play duck, duck, goose later.  Tomorrow.

It’s good to be home.

Em on the High Line Sunday

Emma Takes Mom on An Awesome Adventure

Yesterday Em asked to go to Victoria Gardens, the amusement park, that each summer transforms the ice skating rink  in Central Park into a kid’s idea of heaven.  “Sure, that’s a good idea,” I told her.
“Take the F train,” Emma announced and began to walk purposefully toward Sixth Avenue.  “But the F doesn’t take us to Columbus Circle.  Why don’t we take the 1?”  “Take the F train,” Emma said matter-of-factly and continued walking toward Sixth.   Once on the train Emma found a single vacant seat in the crowded car and said, “Oh no!  There’s no seat for Mommy!  Mommy has to stand.”  The man sitting next to her immediately got up with a guilty expression and offered me his seat.  “Oh no, that’s alright.  It’s no problem,” I tried to assure him.  But he refused to sit back down, further humiliated, no doubt, by Emma’s interjection of “Oh Mommy cannot sit down next to Emma!”  (Clever girl, I thought to myself, and I’ll admit, with a tiny bit of pride.)  Even though that poor man who gave up his seat had no way of knowing that Emma actually prefers I stand and not sit next to her.  It’s become something of a game, with Em saying in a pretend sad voice, “Oh no!” but then when I sit next to her she pushes me or tries to get me to sit across from her.   (Making me all the more determined to get Emma some theatre training.)

When the train pulled up to Rockefeller Center Emma stood up and said, “Have to take the D train.”  I know enough not to argue with Emma because there are a number of things Emma knows better than anyone and one of them is how to navigate the labyrinthine maze that is the New York City subway system.  Except that when we arrived at Columbus Circle Emma stayed put.  “Hey don’t you want to go to Victoria Gardens?” I asked.  Emma grinned at me and said, “Go fast!”  Then she shook her head and said, “Train goes fast, fast, fast?”

“You want to stay on the train?”

“Yes!”  Emma said.  So we did.  As we sped past each stop Emma shouted out, like the seasoned guide that she is, a specific playground or significant landmark.  “Oh, there’s the American Museum of Natural History!  Oh there’s the tar playground! Oh there’s the …”  We raced along until 125th Street where Emma then led me off the train and walked over to the tracks heading back downtown.  “Where to now Em?”  I asked, having decided after we left the house that Em was going to direct the day, I was very much the passenger along for the ride.  And what a ride it turned out to be.

We eventually made it to Victoria Gardens, but not before we stopped at another large playground and ran through various sprinklers, went through a tunnel, listened to a musician playing his Saxophone, past the artist who’d set up shop  face painting small children to look like fairies, goblins and ghouls.

After several hours at Victoria Gardens we took more trains downtown, transferring so many times I can no longer keep our route in my head, but ending at Seal Park where I ran into one of my close girlfriends and her son.  Another hour and then Em said, “Now go to Chelsea Market!”   Off we went, with Emma lacing her arm through mine and occasionally she’d press her soft cheek against my upper arm.  Emma talked about the new school she will be attending in the fall, she listed all her friends, teachers and therapists, “Justus is gone, Sol is gone, Charlie is gone, Lauren is gone, Miriam is gone.  Emma goes to new school!”  (I’ll write a separate post about that another day.)

Upon our arrival to Chelsea Market Emma raced to the water feature and began to point at various things that she wanted to know the name of.  We discussed how there were wooden planks on the floor and what was under those planks – maybe a hole, darkness, who knows?  She tested the plank by sliding her foot through the guard railing and pressing down on it.  She pointed to the water gushing from a large pipe overhead.  We discussed where the water might come from, “Ocean” was Emma’s guess, and it did have a briny smell, either that or the Lobster Place and Seafood Market just opposite was giving off the distinct scent of salt water and fish.  Emma pointed to the large pipe and we walked around to the other side, following the pipe.  A huge wheel hung from the pipe and Emma said, “I can’t reach!  Have to get a ladder to turn the water off.”

This conversation with Emma was revelatory for many reasons, but most importantly it was the first time I have had such a lengthy conversation with her about something that did not have to do with a want, desire or need.  She was curious and though she spoke cryptically throughout our conversation leaving me confused as to what she was saying or asking, it was fantastic.  “Plank fall in,” she said at one point pointing to the water.”  And then again pointing up at the pipe, which I didn’t understand, making me wish I could put the pieces together.  I have been unable to find out any more about the water feature at Chelsea Market, having spent some time on google when we returned home.  I tried to find out the source of the water, does it ever get turned off, is it recycled, etc. so that I could tell Em more about it.   She was curious, engaged even mesmerized.

Eventually we headed back home, but not before we stopped at one last playground to run through the sprinklers!

When we arrived home, Em said, “We have to call Daddy!”  It was just one more first in a whole day filled with them!

Related articles

A Mess, A Mom & Marriage In That Order

Mess of Me

I was a pretty messed up teenager.  I quickly developed into a very messed up twenty something, who progressed into an even more messed up thirty something.  Taking a breath.  Whoooo.  I’ll spare you the gory details, suffice it to say, I was a mess.  Another breath.  I don’t think I’ll get a great deal of argument from those who knew me then.   In fact, it took me until I was 36 to realize I was far too old to be so confused and such an utter mess.   I found people who had also once been where I now found myself, some worse, some not as bad, but they reached out and pulled me up.  Because of them I learned how to reach out to others.  I learned how to ask for support.  I learned to take suggestions.  I learned how to make amends, not apologies, amends.  I learned that in order to feel better I had to behave better.  I learned that the most important thing I would ever do in my life was to become the type of person I admired and those people all had one thing in common.  They were kind.

Becoming that person meant learning to do small thoughtful acts.  Remember I was a mess.  Doing the obvious, was not my strong suit.  I couldn’t suddenly transform myself into someone else, I had to learn to look for things that I could do to help others.  In the beginning it was things like holding the door for someone, giving up my subway seat to someone else, holding the elevator doors open for someone just entering the building instead of madly jamming my index finger at the “close door” button.   I had to learn how to refrain from letting out an exasperated and audible sigh when someone annoyed me, (still working on that one) I had to learn that sometimes saying nothing was better than saying something. This may sound like common courtesy, but I live in New York City, where holding the elevator doors for someone or relinquishing your subway seat brands you as crazy, (exaggeration) in addition I was a mess, remember, which automatically trumps being polite, thoughtful or kind.  By behaving in a way that engendered smiles and utterances of gratitude I gradually began to feel better about myself.  By helping others, mentoring other people younger than me who were also having a tough time, but who now saw a person they wanted to emulate, I began to feel I was worthy and living a life of value. I learned how to be a part of a larger group and that while I often craved solitude, I found I needed community.

About two years after I was hit with the realization that I was far too old to be such a mess, I met Richard.   We decided we wanted children, had Nic, got married, had Emma and suddenly there we were, five years later, after I had that moment of dawning awareness that there must be more to life than what I’d been living.  So yeah, I’m not a great role model in how to graciously and elegantly enter adulthood, easily taking small manageable steps until one day there you are with an infant, a toddler, and a husband.  But I had a little road map, a kind of guide-book with rules and suggestions, not literally, but figuratively and I was continuing to work on how best to behave in any given situation.  I had phone numbers and emails of people who helped me and of the people I helped too, so I felt fairly certain I could handle whatever might come my way.  But parenting is unlike anything else.

Despite what some people might think, okay strike that, no one is thinking this, but it works as the beginning to the next sentence,  I was not given a super hero’s cape along with matching Lycra body suit with the word MOM in dayglo colors emblazoned across the chest when my son was born.   I did not, after 38 hours of natural child-birth suddenly find I could dash into arbitrary enclosed structures, don my supermom costume and reappear in all my lycraed, daygloed glory with  powers of insight, lightening quick reflexes and the infallible ability to intuit what my son needed and wanted at any given moment of the day or night.  Ditto when my daughter, Emma was born.  No handbook came with either child, carefully guiding me through their very specific needs and issues.  Nic cried and held his small hands over his ears when a siren went by or the subway came to a screeching halt in front of us, Emma screamed from internal discomforts none of us could see for the first few months of her life.  Who knew?  We certainly didn’t.

We humans, we come with baggage.  Some have more than others.  Me, I came with a couple of steamer trunks, but I also had that well-worn guide-book from when I was such a mess and couldn’t figure out whether it was better to keep sleeping or wake up and do something.  It was and is my lifeline.  It’s expanded to include lists of blogs, twitter contacts and Facebook friends all of whom I can reach out to.   You see, I now have hundreds of people I can interact with and these people are my community, my tribe.  Sometimes we behave badly, sometimes we don’t agree.  But I know hiding is no longer an option.  Checking out doesn’t work.  The only way out is by staying in.  I know I’m not alone.  I’ve learned that it’s perfectly reasonable to not know or understand something and this is something I have learned from my Autistic friends, the beauty in asking for clarification.  It’s okay to not understand as long as you are willing and want to understand.

There is a great deal of talk about Autistic children.  There is a tremendous amount of fear that if we miss that critical period of our child’s first five years, all is lost.  But we humans have a tendency to grow and progress throughout our lives.  Some perhaps more than others.  I cannot speak for others, but I can speak for myself.  I am not the person I was in my teens, my twenties or even my thirties.  I figure as long as I keep my mind curious, my ideas open to alternate views and continually engage in conversation I will not stop progressing.  There is always hope.