Tag Archives: This is Autism Flashblog

A Word of Thanks

Em and I are traveling again, so after publishing Emma’s post debut, and what a first post it was (!!!!), for the “This is Autism Flashblog” we got on an airplane.  As we didn’t get to our hotel until after eight in the evening, we didn’t read all the lovely comments so many of you left until quite late.  Thank you.  As a parent it means a great deal to have such an outpouring of support and encouragement for Emma’s first post, particularly as it was a post that was incredibly personal.  Emma wrote, “Thank you everyone”  before falling asleep.

The flashblog has almost 250 posts at the moment.  It was a wild success and shows the range and complexity of views about what exactly “autism” is.  Anyone who hasn’t gone over there to read what others had to say, I encourage you to  spend some time doing so.

There is so much I want to say about the flashblog, autism, grassroots protesting, being the parent of a child whose neurology I do not share, but have overlaps with, functioning labels, how we can all influence change, how the more of us who join in, the quicker these shifts will occur, why I keep showing up here day after day instead of sleeping for another couple of hours, but I don’t have time this morning as we have an appointment in another hour that we cannot be late for.

Thankfully I had the foresight to opt for a GPS system on our rental car and do not anticipate getting lost as I did the last time we made this trip.  As a testament to this decision, Emma did not once shout from the backseat, “Oh no!  We’re going the wrong way!” last night, for which I am extremely grateful.

The adventure continues!

Em

This is Autism (Written by Emma)

*A quick note on today’s flashblog ~ This is Autism.  In response to Suzanne Wright’s upsetting and fear-inducing letter entitled A Call for Action  a Flashblog has been organized to take back the phrase “this is autism”, which Suzanne Wright used several times in her letter that was posted on Autism Speaks’ website, the organization she and her husband Bob Wright created eight years ago.   Suzanne and Bob Wright and their organization’s beliefs are exactly what I hope my daughter never sees, hears or is confronted with, but that she feels the repercussions from on a daily basis.

I asked Emma if she wanted to write something for today’s post with the title, “This is Autism”.  She wrote that, yes, she did.  The following is what my daughter wrote, pointing to one letter at a time on a stencil board with a pencil.

This is Autism

Autism is anything.  

It is not bad,  

it is a mindset.

Autism is a method of energy,

it is how I think.

Autism is derided and except in some accepting eyes,

it is seen as not a nice thing,

but

it is me.

*Em