Tag Archives: Asperger

One of My Favorite Blogs…

There’s a blog I love called, Musings of an Aspie written by Cynthia Kim.   Cynthia Kim also has a book, I Think I Might Be Autistic , which is now available as an e-book and in paperback.  She writes about her decision to pursue a diagnosis, with lots of tips for those who might be thinking of doing the same.  “I Think I Might Be Autistic: A Guide to Autism Spectrum Disorder Diagnosis and Self-Discovery for Adults” begins from that “aha!’ moment, addressing the many questions that follow. What do the symptoms of ASD look like in adults? Is getting a diagnosis worth it? What does an assessment consist of and how can you prepare for it?”  But the book is much more than just advice about whether to get a formal diagnosis or not.  It’s about identity, who we are, what that means and why we care.

On Cynthia’s blog she writes about marriage, motherhood, being a “self-employed aspie” as well as a whole host of other topics.

Here are a few of my favorite quotes and posts from her blog:

From Beyond The Talk:  What Else Autistic Girls Need to Know About Puberty

When it came to puberty, my parents did what many parents in the seventies did: they gave me a book about puberty written especially for girls. It was a slim cranberry hardback with an ambiguous title like “Everything is Changing.”

I was a voracious reader, so I would curl up in my beanbag and scour the pages for clues to the mysterious changes that were on the horizon. I think I had many of the same fears, anxieties and curiosities about puberty as my friends had. Certainly my body went through the same changes that other girls experienced. However, I think there are some areas where girls on the spectrum would benefit from additional information or guidance. That’s what I’m going to focus on in this post.

Cynthia wrote a kind of parody about “NT’s” in the same writing style so commonly used when non autistic people write about Autistics.  It is perhaps, one of my favorite posts, although it’s hard to say as there are a number vying for that position.  The quote below is from her post, What is Neurotypical?

“Perhaps the most obvious giveaway is an NT’s tendency to make “small talk” or to want to “chat” with you. While small talk appears to be nonfunctional, for NTs it serves a very specific purpose. It’s a good idea to humor them and participate to whatever degree you can tolerate. If you’re patient with them, many NTs will soon feel comfortable enough to move from small talk to more interesting, in-depth conversations.

Another common sign that someone is an NT? Touching. NTs enjoy all sorts of physical contact and often use touch to greet friends, family and even casual acquaintances. While it’s hard to fathom why your real estate agent or hairdresser feels the need to send you off with a hug, try not to be judgmental while fending them off. NTs are simply wired differently.”

From Cynthia’s Aspergers and Marriage Series, Lessons From an Aspergers – NT Marriage :

The Scientist: “You don’t have to make my lunch every morning. I can pick something up in the cafeteria.”

Me: “I don’t mind. It only takes a few minutes and I know you’d rather have something healthy to eat. This way you don’t have to waste time waiting in line.”

The Scientist: “So you mean you make my lunch because you care about me, right?”

Exactly.

I will end with a quote from her post, A Cognitive Defense of Stimming (or Why “Quiet Hands” Makes Math Harder):

The obvious reason for objecting to “quiet hands”-type instruction is that it shames the child for moving in a way that is natural and comforting for them. Others have written eloquently and in great depth about this subject; I’ve linked to some key pieces below rather than repeating what has already been said.

The case I want to make against “quiet hands” is that in addition to being emotionally damaging, it’s cognitively counterproductive. Think back to the experiment where the people who were told to resist eating chocolate gave up more easily on solving puzzles. Substitute stimming for chocolate and learning long division for solving puzzles. Add in the fact that autistic people have impaired executive function to begin with, making inhibition of actions more challenging, and you can see why asking a child to resist stimming is counterproductive if you’d also like them to learn a new skill.

For those of you unfamiliar with Cynthia’s work, I urge you to go now and enjoy, and for those who already know about her writing, how did my medley of some of my favorite posts from her blog measure up against yours?

Cynthia's Book

Laura Nagle – Paving the Way

The following was a “comment” sent to me by Laura Nagle, who is the star of the wonderful, powerful and not to be missed documentary:  Vectors of Autism: Laura Nagle.  I couldn’t just include it in the comments section, you will see why.  So I asked and received Laura’s permission to publish it here as a post on its own.

Laura Nagle writes:
“I self diagnosed with Asperger’s Syndrome several years ago. I told my sister, who told our father who confirmed my suspicions with recollection of my official autism diagnosis long ago, before the flood. I soon learned of a local chapter of the Autism Society of America, meeting in Flagstaff. I went there. Walking into that first meeting was a large and difficult step. I am so glad that I summoned the courage.

You see, I have always been autistic. I have always been a misfit in the world. I have had all the typical autism issues, but without having any answers as to why. I have paid my bills, but otherwise have wandered aimless upon the earth. I have lived in crushing financial poverty, as do far too many of us. I have found a form of poverty so much worse than that of mere money; and have lived this soul poverty most of my life.

You see, I have had nothing to give. I have been so deep in money trouble that I have not been able to give to charity. By the end of a day’s work in the real and generally entee world I am exhausted, and melted,  and depressed, and not capable of any optional accomplishments. And I have lacked any special worth or skill or talents. What can a poor, fatigued, worthless loner give to anyone. Nothing. Nothing at all. That is the desolation that I have endured. . .

. . . Until my walking into the meeting of the Northern Arizona chapter, ASA. I must note, and strongly, that my life did not change at that moment. That would be to assume that I had a life prior to the ASA chapter and the people I met there. I did not have a life, I had a rude existence. My life began at that moment.

I found the ASA and was found by them as well. It turns out that all that I learned during those harsh years is of value to others. It happens that I have an essential talent of putting an esoteric condition and its personal reality into words understandable by persons who will never experience it. This talent is a gift, I cannot take credit for it, but I will use it as well and as often as I can.

I am motivated. As I scan the decades of my life I see so many ”autistic moments” in which I adjusted my life’s trajectory downward. I see so many moments in which things might have turned out better for me if only I. . . If only someone near me had known the whats and hows of autism. They did not. I want new ones of my Spectrumite Tribe to excel! I want them to do far better than have I! I want them to exceed me in every way.

And I have the chance to do this! These wonderful people around me, people of ASA, people of TASH, these people have given me purpose and friendship and thus life itself – on a silver platter! I have gone so long in a drought! I have people and purpose! The drought is broken, and I am blessed beyond my wildest dreams, and I so deeply appreciate it all!

Without the ever growing people I cannot fulfill my purpose. I need people to dream with me and also for support and guidance. I need those people who listen to my message and apply these concepts in real life and so insure that new auties shall exceed me and my success! People and purpose. I would never have dreamed of this. I have thanks that would take several lives to give.

And I would like to offer those thanks here! Thanks big and wide to the ”Vectors of Autism” team, to my ASA and TASH friends and to all who watch our film and are moved by it. Special thanks go to John, our director, who insisted on making this film more than a documentary. Thanks to our cameraman, Matt who lent his vision – literally! And most of all, thanks to Susan, producer of this film, and of my life!

Dang I am lucky!”

*I believe, but I haven’t verified this with Laura, that when she writes “entee” she is referring to NT (neurotypical).

I was going to title this post “Laura Nagle – Paving the Way For Emma” because Laura is, but it isn’t just Emma who profits from her words and this documentary.  The more Autistics are given a platform from which they can speak out, discuss their experience of the world, the better this world will be for all of us, not just our children, but for every single child and every human being on this earth.

Thank you Laura for writing this.  Thank you for being who you are.  And thank you Leah Kelley of Thirty Days of Autism for introducing me to Laura.