I have spent several hours starting different blog posts over the weekend and this morning, but have been unable to finish any of them. I am still raw after the phone call Richard and I had with the director of the Stem Cell transplantation program at Children’s Hospital in Boston and the director of the Stem Cell Research Program also at Children’s Hospital in Boston. See the previous post below, written by Richard on Friday. An hour after our phone conversation in which they both expressed their concern with the stem cell treatments we have taken Emma to in Central America we received an email from them saying: “We know that you are trying to do the best for your daughter, but given the issues we discussed, George and I think that you should not go back for stem cell treatment.”
I am feeling overwhelmed with emotions at the moment which is why I am having such a difficult time writing a post. This blog is about Emma, not my fragile emotional state and though I have certainly written of the difficulties in parenting an autistic child I have tried to always keep Emma front and center – she is the star of this blog. And yet, it is hard for me to write about anything at the moment because this blog is also about our hopes for Emma. At the moment my hope is in short supply.