Tag Archives: awe

A Self-Portrait and an Inspired Life

Upon returning home the other evening, we were told Emma had become dysregulated because her  favorite imax movie about the Hubble Space Telescope wouldn’t play.  This is the self-portrait she drew, unaided.

The note along with this self-portrait said:

“Emma is sad.  They want to turn it on.  Mommy, I need help turning on Hubble Imax theatre.”

This is the first “self-portrait” Emma has ever made for us.

Do you see the tears?  The eyes?  The downturned smile?  And then there are the Obama-like ears, which made me smile, and the hands!  God I love those hands that she drew, like rakes.  I stood in the kitchen staring at this drawing, this drawing drawn by my amazing little girl who was feeling so, so sad and I felt tears well up.  I felt that constriction in your throat that only comes when you are about to cry and I felt proud.  So, so proud of her for drawing this despite her sadness. My heart ached for her sadness and at the same time I felt awe.  Awe in Emma.  Awe in this world and all of it’s inhabitants and how little we really know or understand.  I felt humbled by the enormity of those feelings and by her.  My little girl.  My beautiful, expressive daughter.  My Emma.  This child that I have been so fortunate to have enter my life.  This child who has taught me to see beyond what I believe is real, to strive to understand what I cannot, to push past my fears, to be present in a way that I never knew was possible.  This child… this unique and stunning child.

It is yet another example of the incredible life I find myself inhabiting.  It is a life and world filled with beauty and appreciation.  It is an enviable life. An inspired life.  A life I would not trade for anyone’s.

To read my most recent Huffington Post, click ‘here.’

To read my guest post on Special Needs.com, click ‘here