People argue that we have to pathologize autism because if we do not, families and Autistic people cannot obtain much needed services. People say that it is one of those unfortunate things, but given the confines of our system, it’s the way it works. People say that those who argue against the medical model for autism are not considering those who are more profoundly affected by their autism, those who require 24 hour care and assistance, people whose bodies cannot and do not do what their brains tell them, so much so that they cannot live without daily support.
I would love feedback and links from those who are Autistic favoring a shift away from pathologizing language and your reasons why. I am particularly interested in hearing from those who are themselves, or who discuss people who are, in need of round the clock care. If you have written about this, or have read anything about this, please send links.
Things people say, that I’d like thoughts on –
The medical model has its place and is needed to get services.
If we do not pathologize how will the people who require assistance receive it?
Any and all arguments and specific reasons why pathologizing autism is harmful. Are there any studies showing the direct links to pathology language and harm and abuse of the people who are being pathologized?
What are the psychological repercussions of pathologizing autism? Personal experience would be great! (If you prefer to keep this confidential, email me at email@example.com.) I will only share content from those who comment here or who tell me in private that I may do so.
A fantastic blog I refer to often and have reread countless times, is Nick Walker’s blog – Neurocosmopolitan, so no one need send me links to Nick’s work. But for those of you who are unfamiliar with him, please, please read. His blog is fairly new and has half a dozen posts, so it’s possible to read everything he’s posted in an hour or so, depending on how quickly you read. I highly recommend doing so. (It took me a bit longer than an hour because I made notes along the way, as well as went to all the links he provided.)