Monthly Archives: June 2010

Bedwetting (Part III)

The night before I flew with Emma and Nic to Aspen, Emma had her first completely dry night since we undertook our anti bedwetting campaign, (June 9th) complete with alarm, waterproof cover sheets, her progress chart and gold star stickers.  Since we arrived Emma has not had a single accident.  This is nothing short of miraculous.  I am looking at her chart filled with notations, gold stars and she has managed five consecutive nights with no bedwetting.

Richard took over when I arrived, giving me a much needed break.  Each morning when Richard reported Emma had not set off the alarm, in fact had waited to pee until the morning or had woken up in the middle of the night, dashed off to pee in the toilet, then came back to bed and fallen asleep again…  I have to admit, I was a bit skeptical.

“Really?” I asked.

“Yeah!  She did great!”

“And she didn’t pee at all in the bed?”  I asked.

“That’s what I’m telling you.  Another dry night!  Amazing!!”  Richard could hardly contain his excitement.

“Wow!”  I said.  So last night I took over as I am taking a seminar beginning on Friday and thought I’d try to do a few nights before handing the reins back to Richard over the weekend.  I spent the night next to Emma.  Every time she stirred I woke up , ever vigilant and wondered whether she would set off the alarm.  But she didn’t.  At one point, it must have been around 2:30AM she stirred, rolled over and I said, “Do you have to pee?”

“No!” she said.

“Are you sure?” I asked.

“No, Mommy!”  Emma muttered and fell back to sleep, as I lay awake watching her.

Someone once said to me during a difficult period in my life, “You have to get out of your own way.”

Now it seems I must learn to get out of Emma’s way.

Aspen

Usually when we travel to Aspen, Emma anticipates our trip and expresses her excitement weeks before our departure date by saying, “Now go through tunnel.  Now get on airplane.  Now put on our seat belt.  You have to wait!  Now go fast, fast, fast, fast.”  She says this last part while pumping her arms and legs up and down and laughing.

“Now go up, up, up, up!  Now fly down, you have to wait.  Go to other airport.  Get on other airplane, go fast, fast, fast.   Now see Granma!”

This last week prior to leaving, Emma went through all of the above only this time she added.  “Hello Aspen!”  And then she waved her hand.  A little later after going through the routine, she added, “You’re so excited to see Granma!”

To which I answered, “Yes, I am!”

She then corrected herself and said, “I’m so excited to see Granma!”

“Me too,” I said.  She gave me a huge grin.

Aspen is one of those places that exist in the world, which is a kind of spiritual vortex.  I don’t know how else to put it.  There is something here beyond its profoundly unique and beautiful exterior.  Of course the physical beauty is stunning, but I have been to many physically beautiful places in the world – the Himalayas, the Alps to name a few – and yet they do not hold the same kind of magic which Aspen does.  Add to the physical appeal, the fact that we have dear friends and family here and Aspen’s colorful history plays a role as well,  but there is something else…  Something I have never been able to describe or pinpoint.  I am not alone in feeling this way.  Countless others have tapped into it and agree.

Though I grew up in Northern California, spending the first 17 years of my life in arguably one of the most beautiful parts of the country, I never felt the sense of ‘home’ as I do when in Aspen.  Aspen is home.  As a child when we came out to visit my grandmother the excitement I felt before we left was so intense I would feel nauseous.  The first thing I noticed upon arriving was the smell.  Aspen has an odor unlike any other.  A mixture of freshly mown lawn, aspen trees, sage and the copious wild flowers which carpet the valley.  The bedroom I stayed in while visiting my grandmother looked out onto Red Mountain.  When I lay in my bed I would gaze out my window staring at the single light shining on the otherwise uninhabited mountain.  It looked to me like a star, winking at me, reassuring me all was right in the world.

Now Red Mountain is covered with hundreds of houses because of the view it affords its residents of downtown Aspen and the Rockies just beyond, making it an ideal place to live.  Even so, I love being on our ranch on Red Mountain.  When we are in my mother’s house all of our bedrooms look either North onto the upper part of Red Mountain, which has no buildings on it or South to a panoramic view of the Rocky Mountains.  Emma’s bedroom has the view of Red Mountain, just as mine did when I was a little girl.  Emma sleeps longer and more soundly here than anywhere else we’ve taken her.

Typically when we return to New York, Emma’s teachers and therapists comment on the uptick in her language.  Whether it is all the outdoor activities she does while we are here or the altitude, the mountains, honestly we aren’t sure, what it is, but each and every time we notice it.  She seems a bit more present, her language and articulation are a little clearer, more precise.  It doesn’t last, we notice the increased progress for a week, maybe two and then it tapers off.  She doesn’t lose the progress she’s made, it simply does not continue at the same rate.  Since we returned from Costa Rica, Richard and I have noticed her progress is as though we had just returned from Aspen, only it hasn’t lessened.  Is this wishful thinking?  We can’t be sure.

Whenever we arrive, my mother always says, “You know Emma is really doing well.  She’s making tremendous progress.”

And I always say the same thing, “Really?  Do you think so?”

“Well of course you probably don’t see it the way I do, you see her every day,” my mother will respond.

But on this trip, even I am seeing it.  She is behaving differently.  She is a little more present, seems to have a depth to her eye contact that I haven’t seen before.  This morning she brushed her own hair, then pulled it back and held it, while I got a hair band and put it in a pony tail for her.  The entire time she kept looking at my reflection in the mirror and smiling.  It was a smile born from connecting with another.

Dedication to a Rock Star

Ariane arrived in Aspen Saturday with Nic and Emma. I’ve been here for a week already, attending the Literary Festival. Ariane’s mom Paula Zurcher (who I adore!) lives here and we come out about four times a year because we love to see her but also to some extent, because travel anywhere else is too difficult. Emma only eats about nine different food items and she only likes to do physically oriented pleasure activities like swimming and skiing. While I think it’s pretty safe to say that Nic wouldn’t hold up too well on a four hour tour of the Louvre, he would at least enjoy other sightseeing activities and have the thrill of visiting faraway places he’s read about or heard about.

No sightseeing for Emma. Unless the sight is a roller coaster or a water slide, which we fortunately have close by in Glenwood Springs, where Nic and Emma went yesterday. Ariane arrived here in time for the reopening of the newly renovated Paepke Auditorium, named after Ariane’s grandfather Walter Paepke, who founded the Aspen Institute,  Aspen Music Festival and Aspen Design Conference, which is now known as the AIGA – the professional association for design. He was a true visionary, a man who accrued his wealth making cardboard boxes, yet had the audacity to run ads for his company that featured art by Herbert Bayer and sayings by Lao-Tzu  – not one word about boxes.

The auditorium opening was amazing, particulary due to the hugely talented Anna Deveare-Smith who performed a reprise of her impression of Paula and her sister Toni DuBrul having lunch with her, which is profound and poignant and one of the funniest things I’ve ever seen.  She ends her brilliant performance with a story told to her by the Paepcke daughters.  Elizabeth Paepcke, their mother, planted a young sapling in her backyard.  Afterward she said, “It will be beautiful in 50 years.”  At the time she was in her 70’s and when it was pointed out that she would not be around to witness that she replied, “I know.  But others will.”

Paula and Ariane would never mention any of this family history stuff on this blog, but there is a legacy to be celebrated that is inspirational and it impacts Emma as much, if not more, as any of us.  After all Emma is the great grand-daughter of those two powerhouses.

Claudia Cunningham is a dear friend of ours who has been incredibly supportive to all of us – the children adore her and when she stays with us in New York, it’s pajama party time. She and I always talk about our firm, no intractable belief that Emma is going to be a huge rock star (and maybe already is). We don’t say this in a half-kidding tone. We mean it. Emma is a natural born performer. She loves an audience, she has an incredible pitch-perfect voice, a set of pipes that can blow the doors off a taxi cab, a gift for the grand gesture and the big finish. And she is staggeringly beautiful.

Why not? Why shouldn’t she be a rock star? She was raised on Gwen Stefani. She loves singing and performing more than anything – even a carousel ride or an all day trip to the water park, and that’s saying something. Should we not dream big dreams for her? Are we over-reaching, not being practical, have our heads in the clouds, our feet off the ground? Are we kidding ourselves? Are we in denial?

Hey, if a business man from Chicago can turn his father’s lumber company into The Container Corporation of America and then go on to create the Aspen Institute, why can’t a beautiful, talented eight year old autistic girl grow up to be a rock star?  She certainly has a head start by having the ambition and vision in her genes.

Here’s to you Emma! You are awesome. And when you read this ten years from now in the back of your limo heading to a sold out show at Madison Square Garden you will always know we believed in you – and never settled for anything less than encouraging your dreams and fueling your heart’s desire every step of the way.

Rock on!

Emma’s School Bus

Emma came home this evening and said, “Sad.”  This was in answer to my question, “How are you?”

“Why Emma?  What happened?” I asked.

“Emma have to go on the school bus.  Emma make you sad,” she said, frowning and nodding her head.

“What do you mean?” I asked kneeling down so my eyes were on the same level as hers.

“You have to wait!  You have to sit!  Emma cry.  Emma bite yourself,” Emma looked directly at me as she said this.

“Why do you have to wait, Emma?” I asked.

“Want to go to Becky’s class.”

“Did your bus come to school early?”  I asked trying to piece together what Emma was trying to tell me.

“You have to wait.  Want to go to Becky’s class.”

“Did someone tell you, you had to wait?” I asked.

Emma nodded her head.  Shouting and pointing her finger she said, “I told you! SIT DOWN!”

At this point I was more than a little alarmed.  “Emma, who said that to you?”

Emma didn’t answer at first, then nodded her head.  “Yeah,” she said in a sad voice.

These kinds of responses from Emma only highlight how difficult it can be to communicate with her and understand her.

“Did the bus driver say that to you or the bus matron?” I asked, knowing these were the only two people on the school bus.

“Bus driver said – I told you NO!  Sit down!”  Emma said in a loud stern voice.  Then in a quieter voice she said, “Emma cry.  Emma so upset.”

I think it was at this point in the conversation when I went to the computer and wrote an email to our lawyer, ccing Richard and Emma’s head teacher, the head master and social worker.  I have no idea what kind of recourse is available to us and so we need advice.  What I do know is that we have had to deal with the Office of Public Transportation since Emma began going to school five years ago.  Emma’s bus arrives between 7:20AM and 7:40AM to take her some fourteen blocks to her school, which begins at 8:30AM.  When I called to complain about the early pick up time, insisting that it cannot possibly take an hour to drive fourteen blocks even if three of them are cross town blocks, I was told the bus picks up many other children who go to several nearby special education schools before Emma is eventually dropped off at her school.  In other words, Emma is driven around the city for close to an hour.  For years now I have questioned the logic in this and have been:  hung up on, yelled at or told this is the way the route is mapped out and there’s nothing that can be done.

A few years ago I was determined to have the bus change their pick up time from 7:15AM to something later.  For two months I went back and forth with various people at the Office of Public Transportation, sometimes calling three and four times in a single day.  By the time they finally agreed to change Emma’s pick up time the semester was coming to an end and we started anew with a new bus company and driver after the break.  Which is another bizarre thing.  Are special needs children the only ones who have a new bus company, new bus driver, new bus route every three to four months?  How is it that neuro-typical children in New York City have the same bus for the entire school year, often for several years in a row?

In the past few weeks I have noticed when the bus pulls up that there seem to be only one or two other children on the bus as was the case Thursday morning, no other children.  Emma was the only child.  So unless the bus is picking up children after Emma, it is driving fourteen blocks (which should take about ten minutes depending on traffic.  If the bus arrives early, (picks Emma up at 7:25AM drives ten minutes to her school, getting there by 7:35AM) it sits idling outside the school until the school’s doors open at 8:25AM.  Which means (if I am correct) Emma is waiting in the bus alone for almost an hour.

What makes all of this particularly horrifying to me is we put Emma on the school bus and cross our fingers she will be treated well and with respect, she will arrive safely at her school in a timely manner, but we cannot know what really goes on because Emma cannot tell us.  We have to trust.  And at this moment I no longer trust.

Nic Teaching Emma to Play the Piano

A few weeks ago Nic was playing “Hey Jude” on the piano.  ”Hey Jude” happens to be one of Emma’s favorite songs, so Emma sang along as Nic played.  A little later, maybe the fifth or sixth time Nic ran through the first verse, Emma wandered over and stood beside him at the keyboard.  Every now and then she would play a note and look at him.  Within a few minutes she was seated at the piano and Nic was teaching her the notes.  (That’s Nic’s hand on the right side of the photo showing Emma which note to play.)

In the beginning Nic helped her by prompting her to find the correct notes, but after a few times, she was “prompting” herself.

This is an instance when her ‘perseverative’ behavior pays off.  After much practicing the notes Nic showed her, Emma was able to play the first verse of “Hey Jude”!

 

Emma’s Language

Emma’s language continues to fascinate.  What follows are a number of examples demonstrating Emma’s creative use of the English language.

This morning she said tearfully, “ Rope?”

I now know she was asking me to help her find Merlin’s cat toy, which Emma has become particularly fond of.  It resembles a fishing rod, only it’s plastic and at the end of a thinner plastic “line” is a cat’s version of a fishing fly.  The “fly” has feathers in royal blue and black though ours, or I should say, Emma’s no longer has any feathers.  Just a few defeated bristles are all that remain.  I tried to get Emma to call the toy “Merlin’s cat catcher”.  Emma repeated the words and then said, “rope,” in a matter-of-fact tone.  Fair enough, saying rope is certainly easier than the tongue twister I was suggesting.  Emma’s interest in Merlin’s toy is not to engage Merlin in any sort of play.  She likes to hold it and chew on the thinner plastic line.  Merlin, under the misguided impression it is still his toy, leaps at the bristled end and tries to grab it in his mouth.  Emma ignores him unless prompted by one of us to use it to play with him.  At which point she will whip the thing around her head so violently Merlin runs away.  Mission accomplished.  No one can accuse Emma of not being able to creatively problem solve.

“Leash?” Emma said the other day.  “Leash” is short hand for any number of things:  tape measure, jump rope, belt or dog’s leash.  It began out in Colorado where she loves to hold the leash attached to one of my mothers’ two German Shepherds.  She is actually terrified of most dogs, including my mother’s.  Giving her the leash to hold is one way to calm her when we are taking the dogs for a walk.  But since we do not own a dog in New York City I know when she asks, she is looking for my tape measure or less frequently her jump rope.

This morning Emma sat on the floor and looked at some work sheets that had been sent home in her backpack.  There were a series of numbers referring to corresponding red dots.  Emma looked at the number and said, “What’s that letter?”  She then counted the red dots, ” One, two, THREE!”

“What’s that number, Emma?”  I said.  “It’s a number.”

Dutifully Emma repeated, “What’s that number?  One, two, three, four.  FOUR!” She looked up at me and smiled.  “What’s that letter?”  She said pointing to the number 6 on the next work sheet.

“It’s a number, Em.  Look these are numbers and this,” I drew the letter A, “is a letter.  Can you see the difference?”

Emma nodded her head.  “A”, she said.

It was not clear she understood the difference.

As I watched her counting and naming the numbers I thought about how it must all seem so arbitrary to her.  A number, a letter, a rope, a leash, a toy…  All things we learn to identify at a very young age and never think about again.  But for Emma this is not the case.  Why would the symbol for a quantity – say the number 3 – be any different than the letter G if one does not understand quantity?  If one continues along this line of thinking all the names we apply to letters in the alphabet must seem incomprehensible.  Why is the letter H called “Aich”?  It’s phonetic sound doesn’t offer any clues either as it’s the sound one makes when hit in the solar plexis or something resembling a whispered “huh”.   As anyone knows who has attempted to learn the English language, for every rule there is an exception, making it an exceedingly difficult language to learn.

The other night Emma was recounting our trip to Costa Rica, something she often does.  She tapped her stomach and said, “Now go bang-bang!”  Which means she was remembering how her stomach hurt.  “Now see thunder.” She added.  Meaning she remembered her headache.  “Make you cry.”  She said and proceeded to pretend cry while looking at her reflection in the mirror.

We have an African Senufo Bird in our loft which is a primitive statue carved from wood.  It stands about five and half feet tall and Emma refers to it as – “giraffe”.  I have corrected her on numerous occasions, but she remains unconvinced.

Yesterday, seated next to Emma while she ate her breakfast, she looked at my upper arm and said,  “Ahhhh… you bit.”  She made a sad face while pointing to three scars on my arm, which I received when I broke my shoulder about 14 years ago.  The doctors inserted three metal rods into my arm to facilitate the mending of the broken bones.  Emma has never mentioned the scars, so it was interesting that she took notice and then showed genuine compassion for what she imagined must have happened – that I bit myself.  Something Emma does to herself when her frustration becomes unbearable.  That Emma was relating the scars on my arm to an action she often takes and was identifying with it was remarkable and very hopeful.

I have come to appreciate Emma’s use of language.   I would like to become fluent in it.

“It’s A Horsey!”

“It’s a horsey!” Emma exclaimed.  Which doesn’t seem so bizarre, (okay so it’s a very thick horse with extremely stubby legs) until you see the rest of the picture…

Definitely not a horse.   Does it have a head?  Check.  Does it have four legs?  Check.  Can it be ridden?  Check.  Then it’s a horse!

Pee Patrol

Dad here, reporting from the front lines of the anti-bedwetting campaign. Ariane had been doing bunkmate duty with Emma for the first six days, and though I had repeatedly offered to relieve her, she hung in there doggedly until I had to stage an intervention after Emma had her worst night since we started (with three changes of bedclothes). Another urgent factor behind me taking the reins was that I’m off to Colorado for a week before Ariane and the kids join me — and she’ll be flying solo every night while I’m gone.

“Take the help while you can get it,” I told her once again.

No argument this time.

The drill during the night is the same as Ariane wrote about earlier – the alarm is attached to her underwear before she falls asleep, and then at some time during the night she and I are awakened by my prerecorded voice shouting, “Emma, it’s time to go pee!” Then I groggily scramble around to her side of the bed, try to get her up and out of the bed asap to minimize the collateral damage. She gets the top sheet wet about half the time along with the blanket we put under her waterproof (not quite!) bedcover. The worst is when she wets the duvet. Lots of time in the dryer.

After the first two days on pee patrol I could really see why Ariane was so sleep deprived. It’s hard to have a decent snooze with one eye open waiting for the alarm to go off.  It made me think of a fireman sleeping in his big rubber boots ready to slide down the pole when the bell starts clanging.

Bottom line, I think Emma is doing great. All three nights she got up once and then didn’t have to go again until the morning. Wake-up time is even earlier than usual – between 4-5:30AM. But she takes off the alarm by herself, goes to the bathroom (with some urging) and then lays around in bed singing until she gets hungry.

She’s a real sport about the alarm and the bathroom scramble during the night too. No complaints, no crying or tantrums, though she does get upset if we can’t get the damn alarm to stop and we both wince from hearing my voice shouting over and over. After we change her bedclothes, nightshirt and underwear, the alarm has to be reattached to her underwear and I must admit I’m still pretty klutzy with it. Sometimes it’s taken me six or seven attempts before getting it on without reactivating the alarm. Interestingly, she took it away from me last night and got it right on her very first try.

Maybe she’s a savant with this stuff. The Princess and the Pee.

Marriage (Part II)

When Emma was diagnosed I threw myself into researching autism.  I was determined to find out everything I could.  I quit my job and devoted every spare second to reading books, trolling the internet for information, talking with specialists, etc.  It was Richard who, one night said to me, “Ariane this isn’t healthy.”

“What are you talking about?” I said indignantly.

“You can’t even see it…  this searching, every second spent reading about autism.”

I remember I was furious with him.  Here I was devoting every second of my free time trying to help our daughter and he was telling me it wasn’t healthy?!

Richard took a deep breath and continued, “You have to go back to work, do something with your creativity. Do something that has nothing to do with autism.”

He was right.  My life had lost all semblance of balance.  And so I did.  I found the career and creative outlet I had been looking for my entire adult life.

The summer after the diagnosis Richard was under tremendous pressure at work. I told him I would take the kids with me to stay with my mother in Colorado for a few weeks so he could have a break and not worry about showing up for the children and me.  The point is we watch out for each other and we encourage each other to have some balance in our lives.

Early on we realized the importance of down time.  Because with an autistic child, all the therapies, no matter which one works for your child, emphasize constant involvement with your child during their waking hours.  I cannot remember ever, in the last six years, sitting down to read the paper without feeling a tiny tremor of guilt.  I should be engaging Emma in some sort of “play” no matter how tired I am.  In addition, not only are you suppose to interact with your child every waking moment, but you are suppose to interact with a child who often does not want to be interacted with.  Despite this, you must pursue them or as Stanley Greenspan used to coach, seduce them.  Add to the mix the lack of sleep, a full work week with all the stresses which come with owning several businesses and… okay you get the picture.  It’s tough.

So Richard and I decided we each needed an evening out.  We picked a night, mine is Tuesday, Richard’s Friday. On my night off I go out with a friend, see a movie or often, just stay at my studio and work late into the night.  We also have a standing date night.  It is sacrosanct.   We have a caregiver booked for the same evening every week.  Both of these nights have been crucial to the well being of our marriage and family.

Over a decade ago during a particularly difficult time in my life I took a walk along 23rd Street where I lived.  It was a clear beautiful spring day and a single crocus had pushed its way up and out of a crack in the sidewalk, a single flowering plant amidst concrete.  I remember thinking how strange it was I hadn’t noticed it before.  After all it was right outside the front door of the building I lived in.

Last week, as I was taking Nic down in the elevator to catch his school bus, he was grumbling about Emma waking him up in the middle of the night.  I reached over and affectionately tousled his hair.

“Mom!  Stop fluffing me!” he said.

I smiled, “I am not fluffing you.”

“You’re trying to make me look like a daffodil,” he laughed, shoving his hoodie over his head.

And I thought of that crocus so long ago pushing up through the great expanse of concrete against all odds.

At a dinner party years ago someone asked each of us to use one word to describe our partner/spouse.  When it was my turn I said, “Kind.”  Richard is of course many things, but that is the word I still think of which sums him up better than any other.

I am a better person as a direct result of being with Richard.  I am pretty sure he feels the same.  We push each other to do the right thing.  We encourage each other to stretch beyond what is comfortable.  We challenge each other.  I can say the same thing about both Nic and Emma.  Each of them pushes me to show up in ways I could not have imagined.  Each of them challenges me to dig deeper, to practice more patience, to stretch, to work a bit harder.  Emma has taught me to appreciate seemingly insignificant things, a hug, a kiss, the unexpected laugh and my life and marriage are the better for it.

A few weeks ago a friend of mine, who is going through a stressful time in her marriage said, “Life is hard, suffering is optional.”

Being able to see the crocuses makes it a bit less so.

Marriage (Part I)

(*I have come to regret beginning this post with these statistics as I think it takes away from the main point.  ALL marriages will inevitably encounter stresses that will place a strain on the best of marriages.  It is not about blaming autism.  It is life.)

The divorce rate of parents with an autistic child is said to be 80%.  However I have found no studies to support this statement or even any articles showing where this seemingly arbitrary number came from.  Challenges of any kind can strain relationships.  As the parent of an autistic child in addition to the stress and financial strain, there are the legal hoops one must jump through to get ones child basic services with the Board of Education, the Board of Public Transportation, insurance companies, the lawyers, the hearings, the paper work and the sheer bureaucracy of advocating for your child.  It is the workload equivalent to running a small business if not more.  When you add the fact that many autistic children have disruptive sleep patterns causing further complications to a family already struggling to cope, you have a situation that will test the strength of any marriage, no matter how solid.

Richard and I have certainly had to weather our disagreements, though fortunately around the big issues:  methodologies, treatments, our vision and hopes for Emma – we agree.  I know of a couple of instances in which one of the couple just couldn’t cope any more and the diagnosis pushed them over the edge and out of the marriage.   I remember early on after we had received Emma’s diagnosis I looked at Richard and said, “How are we going to get through this?”

Richard replied, “Together.”

And for us in many ways it’s that simple.  (Though I need to be reminded of this from time to time.)  We don’t do it alone.  When I am having a moment usually in the middle of the night perseverating on some worry about something I have little control over or which simply hasn’t happened yet – will Emma ever live independently or who will take care of her when we die or will she ever be able to read and write or will she need tens of thousands of dollars worth of dental work because she still sucks her thumb (yes) or will she ever be out of diapers (these are a few examples from my current playlist) or any number of concerns ricocheting around in my head like a pinball, Richard will reassure me, “It’s going to be okay, we’ll get through this.”  There are times when I feel as though I am trying to claw my way out from a dark abyss of fear that ambushes me, pulling me down.  Richard and I have a kind of short hand for this.

“You’re spinning out,” he’ll say after listening to me for a while.

“I know,” I will reply and I do know.  The knowledge doesn’t help me stop myself.

And then he talks me down or if that fails, because I can be stubborn, he will listen a while longer before finally interrupting me with, “Okay, my turn.  You’re totally out of control.”  His is the blunt, direct approach.  It can be quite productive.  He will then go on to point out why my thinking is deranged.  90% of the time I can listen to him and calm down.  Richard has his own version of spinning out, but it’s usually work-related.  Which isn’t to say he doesn’t worry about Emma or Nic, he does, it’s just he is better at having some perspective on them and doesn’t get as easily thrown into the “doomsday pit” of despair.

When Emma is having a melt down, which can go on for quite some time, we pitch hit.  One of us will try to soothe her and when the other sees it isn’t going well – our patience is fraying – the other will jump in.  Most of the time one of us is able to maintain a calm the other is lacking.  Of course this leaves poor Nic fending for himself.  Though Nic, too, has gotten quite adept at calming things down.  “Here’s what you guys need to do,” he’ll say, looking up from his latest drawing of some fanged, blood dripping, all powerful monster.  “You can’t let her get away with this.  She won’t stop and she needs to learn she has to stop.”

Richard and I look at each other with raised eyebrows.

“You need to choose the thing that’s most important and work with her on that first.  Because otherwise it’s just too much,” he’ll add.

Smart kid.  (A post devoted to siblings of autistic children next week.)