Category Archives: Bedwetting

The Final Chapter (I hope) in the Bedwetting Saga

We returned to New York City Friday evening and I am pleased to announce my theories have all been proven wrong.  Emma has not wet the bed once in 17 nights!  This morning I looked at the “bedwetting chart” to make sure I was remembering correctly.  It took just over two weeks – exactly 16 nights – for Emma to stop wetting the bed using the Malem Alarm.  (See all “bedwetting posts” for full description on the process.)  The booklet, which came with the alarm, warned it takes on average three months for a child Emma’s age to completely stop wetting the bed.  When I read that I thought, okay add another three months because she’s autistic.  While it felt like a huge commitment on our part, it seemed well worth it in the long run and so we launched in.  Fully prepared for six months of sleepless nights, groggy, non-productive days with only a glimmer of hope weakly encouraging us to go another day.  Because we couldn’t know Emma would be able to train her muscles even after six months.  The autistic diagnosis throws everything into question.

I cannot tell if Emma takes any pride in the fact that she is now a “big girl” no longer in need of those dreaded diapers.  I cannot tell if she understands the significance.  Each morning Richard and I have said, “Emma!  You did it!  You slept without wetting the bed!”  And then we clapped and cheered while Emma smiled at us and repeated, “You did it!”

For those interested… we used the Malem Alarm purchased from www.bedwettingstore.com

We opted for the recordable alarm that allows you to record your own voice as opposed to the “car alarm” beeping noise, which we thought might frighten her.  (Though our prerecorded voice was pretty terrifying when repeated over and over again.)  We also purchased the booklet and “waterproof pads” (not fully waterproof) for the mattress.

Bedwetting (Part IV)

Emma has now successfully slept through the night without peeing for almost two weeks.  According to the booklet we received along with the alarm (see earlier bedwetting posts) entitled “Seven Steps to Nighttime Dryness – A Practical Guide for Parents of Children with Bedwetting” it is important to know when to stop using the alarm.  The booklet instructs:  “Before you stop using the alarm, your child should have 14 consecutive nights of dryness with nightly alarm use, and 14 additional dry nights using the alarm every other night.”

Well I don’t know about you, but this just seems like overkill to me.  Emma has gone 12 nights without bedwetting and if I’m honest, (which I’m about to be) she has only worn the alarm five or six times during those 12 nights.

“You’re totally flying without a net,” Richard said when I announced I just didn’t see the point of pinning the alarm onto her nightgown yet again.

“But she hasn’t wet the bed at all since we’ve been in Aspen,” I responded.

“Are you at least putting the pad down?” Richard asked.

I shook my head no.

“Are you insane?!” Richard asked.

“No,” I answered with a tinge of defensiveness.  “I have a theory about this.”

“You always have a theory,” he muttered.

I’m just going to interrupt this dialogue to say – one of the many wonderful things about family is they have to listen to ones theories.  I think it’s perhaps even part of US Policy on marriage and family or if it isn’t, it should be.  Theories are good, if for no other reason than it allows the other family members to tease the theorist later when their theory is proven wrong.  Which in my case is with frightening regularity.  But that doesn’t stop me from coming up with new ones.

“I have a theory,” I repeated, looking meaningfully at him.

“Okay.  Let’s hear it,” he said as my mother wandered into the kitchen joining us.

“Oh I love theories!” my mother added.

“Okay.  Ready?  Here it is,” I allowed for a dramatic moment of quiet to pass.  “She’s dehydrated out here and as a result she is hardly peeing at all, even during the day.”

“What?  You mean her kidneys are failing?” my mother asked with a look of concern.

“No, Mom!  I don’t mean it so literally.”

“But you just said she wasn’t peeing and you think she’s dehydrated,” my mother said.

“Okay, well not technically, but she isn’t drinking as much out here and therefore isn’t peeing as much either.”  I looked triumphantly from Richard to my mother.

Richard walked out of the room.

My mother watched him go and then said, “Where’s he going?”

“Richard hates my theories,” I answered.

“I love your theories,” Richard’s voice could be heard saying from another room.

A few days later after Emma and Richard had spent the entire day together, Richard said to me, “You know she’s been drinking apple juice and water all day.”

“Uh-huh,” I replied.

“Tons of liquids,” Richard said.

“Your point?” I asked, somewhat rudely.

“No point.  Just providing you with some facts.  Emma.  Consumption.  Lots of juice.  Lots of water. “

“Okay,” I conceded.  So maybe she’s not dehydrated.  Maybe it’s the altitude.”

“Basically you’re saying we hit on a free space while in Aspen, but she’ll start wetting the bed when we return back to New York.”

“Yup.  That’s what I’m thinking,” I replied.

“Huh,” Richard said.

So maybe I’m wrong about my theory.  At this point I hope I am.  And since this is now day 13 I’m keeping my fingers crossed that when we return to New York in another two days, I will be able to report an end, once and for all, to the bedwetting.   Regardless of my theories, Emma has done spectacularly well up to this point.  We are all so proud of her.

This, all of us, agree on.

Bedwetting (Part III)

The night before I flew with Emma and Nic to Aspen, Emma had her first completely dry night since we undertook our anti bedwetting campaign, (June 9th) complete with alarm, waterproof cover sheets, her progress chart and gold star stickers.  Since we arrived Emma has not had a single accident.  This is nothing short of miraculous.  I am looking at her chart filled with notations, gold stars and she has managed five consecutive nights with no bedwetting.

Richard took over when I arrived, giving me a much needed break.  Each morning when Richard reported Emma had not set off the alarm, in fact had waited to pee until the morning or had woken up in the middle of the night, dashed off to pee in the toilet, then came back to bed and fallen asleep again…  I have to admit, I was a bit skeptical.

“Really?” I asked.

“Yeah!  She did great!”

“And she didn’t pee at all in the bed?”  I asked.

“That’s what I’m telling you.  Another dry night!  Amazing!!”  Richard could hardly contain his excitement.

“Wow!”  I said.  So last night I took over as I am taking a seminar beginning on Friday and thought I’d try to do a few nights before handing the reins back to Richard over the weekend.  I spent the night next to Emma.  Every time she stirred I woke up , ever vigilant and wondered whether she would set off the alarm.  But she didn’t.  At one point, it must have been around 2:30AM she stirred, rolled over and I said, “Do you have to pee?”

“No!” she said.

“Are you sure?” I asked.

“No, Mommy!”  Emma muttered and fell back to sleep, as I lay awake watching her.

Someone once said to me during a difficult period in my life, “You have to get out of your own way.”

Now it seems I must learn to get out of Emma’s way.

Pee Patrol

Dad here, reporting from the front lines of the anti-bedwetting campaign. Ariane had been doing bunkmate duty with Emma for the first six days, and though I had repeatedly offered to relieve her, she hung in there doggedly until I had to stage an intervention after Emma had her worst night since we started (with three changes of bedclothes). Another urgent factor behind me taking the reins was that I’m off to Colorado for a week before Ariane and the kids join me — and she’ll be flying solo every night while I’m gone.

“Take the help while you can get it,” I told her once again.

No argument this time.

The drill during the night is the same as Ariane wrote about earlier – the alarm is attached to her underwear before she falls asleep, and then at some time during the night she and I are awakened by my prerecorded voice shouting, “Emma, it’s time to go pee!” Then I groggily scramble around to her side of the bed, try to get her up and out of the bed asap to minimize the collateral damage. She gets the top sheet wet about half the time along with the blanket we put under her waterproof (not quite!) bedcover. The worst is when she wets the duvet. Lots of time in the dryer.

After the first two days on pee patrol I could really see why Ariane was so sleep deprived. It’s hard to have a decent snooze with one eye open waiting for the alarm to go off.  It made me think of a fireman sleeping in his big rubber boots ready to slide down the pole when the bell starts clanging.

Bottom line, I think Emma is doing great. All three nights she got up once and then didn’t have to go again until the morning. Wake-up time is even earlier than usual – between 4-5:30AM. But she takes off the alarm by herself, goes to the bathroom (with some urging) and then lays around in bed singing until she gets hungry.

She’s a real sport about the alarm and the bathroom scramble during the night too. No complaints, no crying or tantrums, though she does get upset if we can’t get the damn alarm to stop and we both wince from hearing my voice shouting over and over. After we change her bedclothes, nightshirt and underwear, the alarm has to be reattached to her underwear and I must admit I’m still pretty klutzy with it. Sometimes it’s taken me six or seven attempts before getting it on without reactivating the alarm. Interestingly, she took it away from me last night and got it right on her very first try.

Maybe she’s a savant with this stuff. The Princess and the Pee.

The Bedwetting Saga

Over the weekend Emma had another successful night with no alarm sounding.  We celebrated her progress with stickers and lots of cheering.   However last night, for reason’s unknown, Emma peed, setting the alarm off twice at 1:28AM and again at 3:30AM only to rise fully awake and energized at 5:00AM.   At which time she insisted on listening to Mary Poppins on her Ipod while singing along to Chim Chimeree, Supercalifragilisticexpialidocious among others and clapping.   Thankfully she has an angelic voice.

The challenges of parenting are always interesting, but the challenges in parenting a child with “disabilities” or as I like to think of them – different abilities – are that much more interesting.

I have a friend who had a child born with a wide variety of complications.  He was unable to lift his head, let alone walk or talk.  She used to tease me that I would call her to have lunch when I was feeling depressed.  And I would answer – You’re right!

As trite as it is to write – someone always has it worse.   Reminding myself pulls things back into perspective.   Yes I’m tired, but getting Emma out of diapers is something that will bring her one step closer to her neuro-typical peers.

Richard, who every night since we began this ‘project’ has volunteered to take over the bedwetting monitor position, will be taking the reins for the next few nights.  I cannot imagine trying to do this on one’s own.  And I am referring to all of it.

Bedwetting Part II

Last night Emma slept through the night without peeing!   (See yesterday’s post.)  In brief we are using a device much like those irritating car alarms except that this alarm is smaller and secured to the shoulder of her nightgown.  I am coming around to the belief it serves a dual purpose and would be an excellent method of torture in warfare against the enemy.

I barely slept in anticipation of the alarm going off at any second and when it didn’t, began to question whether it was in fact working.  To verify, every 15 to 30 minutes I “checked” the sheets underneath Emma to be sure she had not wet them yet.

At 5:30AM the alarm sounded (Emma had inadvertently set it off in her struggle to remove the sensor from her underwear) and since I was fully awake and had been for a good portion of the night, was a bit better at helping her remove the sensor than yesterday’s almost comical attempts.  Only this time, having successfully unclasped the sensor still attached to the alarm, which was pinned to the shoulder seam of her nightgown, I could not shut the alarm (ie my voice) off.  Being confronted at 5:30AM by ones own voice repeatedly shouting – Emma!  Wake up!  It’s time to pee! – was brutal.

Poor Emma having done her part, (peed in the toilet) said to me in an irritated tone, “Turn it off!”

“I’m trying!” I cried.

“Ach!” Emma responded.  It was an utterance of profound exasperation.  Either that or her German heritage is taking hold in ways we could not have anticipated.

I was eventually able to dry the sensor sufficiently to turn the alarm off.  Emma had long since returned to bed, shouting out to me, “No!” when my recorded voice continued to irrationally demand she get up and go pee.

The alarm is certainly doing its intended job and so much more.   We continue –  11 weeks and 5 nights to go!

Bedwetting

I posted about Emma’s sleep issues last week and in connection to that, or perhaps they are two entirely separate things, her need to wear a diaper at night.  Richard and I made the decision to tackle the bed wetting first and see where that takes us with the sleep issues.  (We have found Melatonin very helpful for sleeping and she is sleeping longer with fewer middle of the night awakenings.)

Last night marked the first night using the alarm system recommended to us.  Evidently this system can take about 12 weeks for the child to be fully trained.  In other words, this is a commitment as one of us will need to sleep nearby to assist  her when the alarm does off.  (It turns out we actually need a third alert and fully awake person to assist me in assisting her, but we didn’t know that part last night.)

The alarm is a small box, which is attached to her nightgown at the shoulder by a large almost impenetrable safety pin.  It took me a full five minutes to open the thing and that was without it being hooked onto her nightgown.  A wire leading to a sensor is attached to her underwear also with a vice like grip.  When she pees, the sensor detects the moisture and the alarm vibrates, flashes a red light and the sound goes off simultaneously.   After reviewing a number of different options, we decided to get the alarm that can be recorded with my voice – “Emma!  Wake up, it’s time to go pee!”  The other options are car alarm sounding beeps, complete with lights flashing and the whole thing vibrates.  Did I mention the vibration already?

Before going to sleep last night we did a practice drill.  Emma was terrific, laughing and running to the bathroom as the alarm, flashed, shook and  blared my recorded voice.

At 1:24 AM both of us were woken by my now annoying voice repeatedly shouting – Emma!  Wake up!  It’s time to go pee!  – those words were said over and over again until I figured out how to unlatch the sensor from her underwear, (no small feat) then hit the reset button.   At 1:30 AM it’s a tough assignment, made all the more so as I had to remove the sensor while Emma ran to the toilet, so I was working with a moving target.  The whole thing reminded me of one of those reality TV shows where the contestants are forced to manage ever more complicated obstacles.

Emma was a trooper and forgave me my fumblings.  She immediately fell back asleep until 6:00AM when she set the alarm off, like a prison break, by attempting to remove the sensor herself before getting up to pee unaided.  All in all it was a tremendous success and though I am a bit groggy this morning with a horrific headache, I am feeling incredibly proud of her.

Emma put the gold star on the 12-week chart we have begun and chose another sticker for herself – a heart – which is still on her nightgown.
Good for you Emma!  Now we just have to get through the next 11 weeks and six nights.  Who knows?  Maybe it won’t take Emma that long.  Or as my brother would say, “Who knows anything?”

Sleep Issues (Part II)

When Nic was almost a year old we “Ferberized” him.   Dr. Richard Ferber, a pediatric sleep specialist out of Children’s Hospital in Boston wrote a controversial book – “Solve Your Child’s Sleep Problems”.    The method is to follow a regular bedtime routine, then put the child to bed while still awake.  One is advised to leave the child for increasingly longer periods until the child falls asleep on their own.  Some feel it is traumatizing for the child, leaving emotional scarring.   We tried a number of methods to get Nic to sleep in his own bed, but none worked.  When we Ferberized him it took about ten days for him to be able to sleep on his own.  Nic has had no sleep issues since.

Richard and I decided we would try this method with Emma so we dusted off our copy filled with pencil notations and charts from our time with Nic and put it’s concept to work.  Emma seemed to respond well, within a few days she was falling asleep on her own.  We both sighed a huge sigh of relief and shoved the book back on the bookshelf.  After a few months of calm, Emma began getting up in the middle of the night again.  We tried putting her back to bed and leaving.  Within seconds her shrieks could be heard throughout our loft followed by the sound of her feet running over the wooden floor heading into our bedroom.  Over the years we have tried a number of different methods, but nothing seems to last for more than a few months.  Inevitably Emma returns to her irregular sleep patterns.

In the past year, if left to her own devices, Emma falls asleep between 9:00 and 9:30PM, waking at 5:00AM.  We consider ourselves lucky when this occurs.  We have had months of her falling asleep by 9:30PM only to wake at 2:00AM, unable to go back to sleep until 5:30AM.  We then have to wake her at 6:30AM so she will catch her school bus on time.  Meanwhile neither Richard nor I have been able to fall back asleep and are operating on about three hours of sleep.  A couple days in a row of this and I, for one, am grumpy, jittery and relying heavily on increasing amounts of caffeine to get through a day at work.

Richard and I think Emma’s sleep pattern is exacerbated by the fact she still wears a diaper to bed and does not seem able to wake herself to pee in the night.  We do not allow her to drink any liquids after 6:00PM, have her urinate before going to sleep and yet she still pees between 1:00AM and 2:00AM. Because she’s so big, our choice of diapers have become limited and so she pees through the diaper and into the bed every night.  (Emma is toilet trained during the day.)

We have done some research and her condition appears to have a name:  nocturnal enuresis, which apparently affects some 5 – 7 million children in the United States alone.  Evidently a bed wetting alarm system has had the highest success rate in treating this problem.

Whether solving her bed wetting issues will also solve her sleep issues is questionable.  We intend to tackle the bed wetting first and see what we can do regarding the sleep.  (To be continued)

How about a little humor here?  I’m all out, but if I think of something or hear something I’ll post it.