Category Archives: scripting

The Beauty in a Conversation

Emma and I are heading out to Fire Island this afternoon with my friend, Bobbie.  This has been cause for great excitement as Emma has counted the days until we leave.  Last night, Emma and I had the following conversation.

Emma:  Go to take Bobbie at the beach!

Me:  Yeah.  Are you excited?

Em:  Yeah!  So excited to see Bobbie and Mina and Luca.  Going to go in the ocean.

Me:  Yup, we can go swimming and…

Em:  (interrupting) Going to go play in the sand.

Me:  Yes.  We’re going to spend the night.  We’re going to spend two nights there.

Em:  (Holding up her fingers) Three minus one equals two!  Having a sleepover with Bobbie at the beach.  Going to bring Cokie!  (Cokie is a scrap of what was once a blanket, measuring about five by three inches and is constantly getting lost leading Emma to panic.  We live in dread of this last large scrap one day mysteriously disappearing into the great dark unknown along with the rest of her blanket.)

Me:  But Cokie has to stay in your bedroom.

Em:  Cokie get lost!  Ahhhhh!  Who took it?  Somebody threw it away.  They threw it.  You cannot throw Cokie.  (All of this was said very quickly in an animated voice, it’s a kind of scripting, but it’s within a context in that Emma is expressing her fears and anxiety that her blanket might get mislaid.)  No, not going to bring Cokie into the water.  You can’t bring Cokie onto the beach, that’s silly.  Cokie might get lost!  Cokie will get dirty.  Ick!  Cokie has to take a bath!

Me:  You’re funny.

Em:  (Laughing)   No.  Not going to put Cokie in the washing machine!  It’s too little.  No, not going to put Max in the washing machine, he’s too big.  Max can’t breath.  You have to pull him out.  That’s too small!

Me:  Do you think we should wash Cokie before we take it to the beach?

Em:  Nah.  Have to gotta go.  Max came to the book party.  You hit Max.  You pull Max’s hair.  No.  You cannot pull Max’s hair.  You have to stop.  You can’t do that.  Max is hurt!  (This is another script, but it’s one she made up and it’s really a spoken memory of Richard’s book party celebrating the publication of his novel a month ago.  Max is a great friend and someone Emma adores.  When Emma really likes someone she wants to pull their hair and hit them.  She is still trying to sort out how to resolve some of these impulses while also connecting and making physical contact with another human being without hurting them.  We are working on this.)

Me:  Yeah.  That’s really hard, isn’t it Em?

Em:  Makes me so frustrated! Grrrrr!

Me:  (Laughing)  Do you feel frustrated now?

Em:  Nah!  Emma’s happy!  Going to go with Bobbie to the beach.  Going to have so much fun!

Just before I had this conversation with Emma, I was talking with my friend Ib.  She said, “It is easy to picture Emma talking more.  She can still be her if she does.  She will talk oddly about odd things that she blisses out about while twirling string, and walk away mid sentence.”

And I wrote back, “Yeah, and I’ll (removed explicative) love that!  Seriously love that!  Because I want to walk away in mid sentence half the time…”  Ib then wrote back “And frankly, in your family, it won’t be that odd.  Hehe.”

Which made me laugh out loud and filled me with so much hope and happiness with the thought that Em and I could converse the way Ib and I do.  And then Emma came home and I told Ib I’d talk to her tomorrow and Emma and I proceeded to have the conversation I’ve transcribed above.

Yup, there are little miracles happening all the time!

Have a wonderful weekend everyone!  The journey continues…

Is There A Future for Emma in the Theatre?

Yesterday, as we were leaving Nic and Emma’s gymnastics class, Emma found a stray balloon.  No doubt left by one of the children who attended a birthday party there earlier, Emma looked at me with a sly grin, then grabbed the balloon and said, “Look!  It’s a birthday party balloon.  Take it home?”

Emma loves nothing more than birthday parties, balloons and singing Happy Birthday.  ”Sure Em.  But remember to hold on to it, because if you let go, it’ll fly away,” I said.

Emma nodded her head gravely and said, “You have to hold it.  If you let go, the balloon goes up in the air.  Oh no!  Don’t go away balloon.  You have to hold it.  But listen, if you let go, there will be no more balloon!”

Emma’s way of coping with anxiety is to repeat a script of sorts.  These are things she’s heard from a variety of sources.  She pulls together threads and combines them to make a dialogue that she then repeats.  Many Autistics script.  Some people feel scripting is to be ignored and even discouraged, but I find Emma’s scripts are informative and useful.  It is the way she is attempting to communicate.  I don’t believe they are nonsense or meaningless.  I believe she uses them in situations when she cannot come up with words of her own.

Emma managed to get through the next four hours without losing the balloon.  This was no small accomplishment as those four hours were packed with activities, ranging from shopping for shorts and an awesome camouflage swim cap for Nic, bathing suits for Em, swim goggles for me, ear plugs for all of us, slices of pizza for everyone, before meeting Richard at the local Y to swim.  Emma attempted to jam the balloon inside our locker, (we ended up letting it float outside the locker, with the string inside the locker ensuring it wouldn’t float away.)  After swimming we went to a room where they’d set up an obstacle course and bouncy castle.  Meanwhile Emma’s balloon, which she’d secured inside my swim bag, stayed put.

Once outside as we headed home Emma suddenly gasped.  All of us watched with dread as her beloved balloon sailed out of reach.  In the past, losing her balloon would have induced a meltdown of epic proportions.  ”Oh no, my balloon!” Emma said, her tone and inflection sounded vaguely familiar.  Emma stomped her foot and said again, “Oh no, my balloon!  Can you tell how Katy feels about losing her balloon?  Yes, Katy is mad she lost her balloon.  We can tell she’s mad because she’s raising her fist and stomping her foot.”

I looked at Emma in shock. Emma was repeating the dialogue from an app Marc Zimmerman, CEO of the app The Social Express Lite sent me more than six months ago.  At the time I showed it to Emma who liked it and watched the five different lessons a couple dozen times and so a few months later, I bought the long version of the Social Express, but other things took precedence, so it was soon forgotten.

“Emma lost her balloon,” Emma said looking at me as I awaited the meltdown I was sure would come.  Instead, Emma stood still, gazed up at the balloon floating farther and farther away and said, “Emma’s mad she lost her balloon.”  Emma stared at me for a moment and began to laugh.

I was amazed.  This was NOT the reaction I expected.  ”Katy’s mad.  Emma’s mad,” Emma laughed.  She gave me her pretend “mad” face –  frowning, mouth set in a silent scream – and dissolved into peals of laughter.

I was reminded of a conversation I had with a friend of mine (who’s autistic), just two days ago.  She told me how going into a theatre program changed her life.  She told me how theatre taught her a range of things, including an increased desire to read because there was a reason to,  she learned how others thought and what motivated them.  She said, “In theater, everyone is honest, they have to be.  If they are not, the director says, No, be honest.”

“I am determined to find a theatre program for Emma,” I said to Richard.  ”I think it is the thing that could change everything for her.”

“I’m with you,” Richard said.

When we got home Emma and I watched the Social Express together.  When the story with Katy losing her balloon came on, Emma pointed to the screen.  ”Oh no! Katy lost her balloon too!”

And she began laughing.

Emma demonstrating her angry face