Category Archives: air pressure

Awaiting the Storm

If you listen to the news, which I haven’t but Richard, in an uncharacteristic display of interest regarding the weather, has been keeping abreast of the latest news by reading updates on the NYTimes online, you already know Hurricane Sandy is heading inland and may or may not hit New York City at some unknown point…  it’s hard to say. Meanwhile, everything is shut. All the stores are closed, all public transportation has screeched to a halt, friends of ours who are in “Zone A” have had the boilers in their building shut off since yesterday evening, some others have been evacuated, and yet, other than the occasional breeze and light sprinkle, there is nothing to suggest anything is amiss.

On Saturday as Nic and I did our weekly grocery shopping run, Nic commented on the long lines. The typical four-hour window given for delivery of one’s groceries had been suspended and other than thinking it strange that so many more people were out getting groceries, it didn’t occur to me to be concerned.  It has to be said, we do not watch the news on television and my reading of the NYTimes online is topic specific.  When Nic asked why so many people were grocery shopping I said something about how it was always like this on Saturdays and then went into a lengthy explanation about typical Monday through Friday work weeks and how it made sense that Saturday was a good day for grocery shopping. By the glazed expression on my eldest child’s face, I’m pretty sure I lost him after the first 30 seconds. Looking back, the incredulous expression on the woman’s face directly behind us now makes sense and I feel a little saddened to realize it was not a look of awe at my brilliant analysis of the shopping habits of fellow New Yorkers.

Last night I explained to Emma that there was a big storm headed our way and because of it, school would be closed and that there might be heavy rain during the night, but that we were all going to be safe.  I was a bit more concerned that the changing air pressure might wake her in the night, causing her pain and upset.  When she woke this morning and came running into our room, I said, “Em, has it started raining yet?”  She said, “Rain, lightning and thunder!”

“Really?” I said, peering out into the darkness.  ”I don’t hear any rain.”

“It’s raining.  No school,” Emma said, with the kind of unerring certainty that does not invite argument.   Then she pulled the bed sheets up over her head.

I asked Em if she wanted to go up on the roof to see first hand what the weather was like.  I grabbed my camera and rain gear .  ”Oh honey,” Richard said as he watched me zip up my rain jacket, “you’re going to document the storm,” he wiggled his fingers to make quotation marks.  ”I love that.”

“It hasn’t hit us yet,” I told him.  ”It might.  Later.  You never know.  They’re saying 95 mile per hour winds and 10 foot waves.  Maybe I’ll take the kids to the river later,” I announced.

“I love that you’re going out to record the weather and not hunkering down into fear-bomb-shelter mode,” he looked at me with what I’m pretty sure can only be described as pure, unadulterated, adoration and admiration. (I am convinced I’m reading his look correctly and NOT the way I completely misinterpreted the look of the woman in the grocery store.  Of course, I have been wrong before…)

Em on the roof just now in appropriate, pre-Sandy, attire

Air Pressure, Autism and How To Make A Perfect Arnold Palmer

Em has a cold.  When Em has a cold it’s stressful to her.  She repeatedly holds her nose and blows, despite being told this will not reduce the pressure she feels in her head, she does it anyway.  Maybe it momentarily does release the pressure and that’s why she keeps doing it.  I don’t know.  What I do know is that having a cold along with a change in air pressure causes her tremendous discomfort and pain.  A friend of mine, who is also Autistic told me her head feels as though it’s going to explode when the air pressure changes.  She told me it’s so excruciatingly painful she loses the ability to speak.

While I do not share in Em’s pain due to the barometric pressure, I did manage to throw my back out Friday afternoon.  No this is not going to be a “woe is me” post, I promise.  I could barely walk on Saturday and so Richard, being the all around amazing, wonderful, practically perfect guy that he is, took Em to the Metropolitan Museum of Art, ending with the Natural History Museum where they played an extended elevator game. (Emma rides the glass elevator in the biolife section where an enormous whale is suspended from the ceiling and a video plays on a massive screen showing the beauty of the ocean and the slow, march towards its inevitable death because of mankind’s negligence and refusal to take responsibility, while Richard pops into view and pretends to scream, and Emma, safely cocooned inside the moving glass elevator hysterically laughs.)  This game can go on for a very long time.  Thankfully Emma was NOT slowed down by her cold or the pain caused by the air pressure.

By the time they returned home I was able to hobble up to the roof with Em where she insisted on wearing this outfit.  It’s a new take on the standard knight costume, a kind of King Arthur’s knight meets one of the witches from Macbeth.  Personally I think it totally works and can we all take a moment and admire Emma’s pose.  (No.  I did not set this up.  She saw the camera and struck a pose unprompted..)

Last night, having spent yet another jam-packed day going to MOMA and (yes again) to the Natural History Museum with her awesome dad, Emma’s cold had worsened only slightly and my back had not improved.  ”You two are quite the pair,” Richard observed as I hobbled over to Em’s bedroom, carrying my iPad, while making (almost inaudible) groaning noises.

“I’m going to read to her and then it’s zombie time,” I warned him.  Lest any of you conclude this is referring to some form of kinky foreplay specific to Richard and me, let me dispense with this notion.  It’s not.  We are catching up on season two of the series ‘The Walking Dead’, which Richard has tried to get me to watch for about six months.  Given my weakened state I finally gave in and found I rather enjoyed it.  Lots of zombies, end of the world as we know it, great non-zombie characters and it’s only while watching a zombie show that one can truly appreciate the following conversation: “That was totally unrealistic!  Zombies can’t move that quickly.”  Or “Gross.  How can a zombie have that much blood in their skull?”  Or  ”So, wait… they eat humans?  But how are there so many of them?  I mean are the zombies basically left-overs?  Why would they just bite one human and devour another, seriously I don’t get it…”

And then, as though this might explain everything, Richard asked, “Want to go back and start from the first episode?  You’ve missed a lot.”

“No.  That’s okay.  Just keep filling me in.”

So when I was jolted awake at 3:45AM by a body (Emma’s) lying practically on top of me, I just rolled over in a zombie induced state of undead exhaustion.  I heard Richard get up and take her back to her bedroom and ten minutes after he returned to our bed, having immediately fallen back asleep, I heard Emma crying.

I grimaced in pain as I made my way to her bedroom where she had the lights on and was whimpering “Mommy come.  Ears popping.  Go see Mommy nurse.”

“Oh Emmy.  I’m sorry.  Want me to lie down with you for a little while?”

“Mommy stay.”

I promptly fell asleep only to be abruptly awoken, a few hours later when my face hit the floor, having fallen out of bed, either that or Emma pushed me in an attempt to gain a few more inches of room on her twin bed.  In a dazed state I slowly stood up and found, much to my surprise, my back felt fine!

“I think falling out of Em’s bed this morning made my back better,” I announced to Richard as we got breakfast for the children.

“Really?” he said.   Then he added, “Cheaper than a chiropractor.”

“And not as painful as a zombie bite.”

As an added plus, Emma seemed to feel much better this morning too!

Lest anyone accuse me of ‘making lemonade from lemons’, I need to add that I was voted, “Most Negative” in high school, a high school, by the way, of over 3,000 students.  Just sayin’… Plus, I don’t much care for lemonade, unless it’s in an Arnold Palmer and even then limeade is preferable.

The Perfect Arnold Palmer

Fill two-thirds of a glass with brewed, cooled English Breakfast Tea, add Limeade and a splash of Cran-Raspberry juice, garnish with a sprig of fresh mint. Voila! 

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But I’m Her Mother…

“Mommy!  Mommy!  I need help.  Fix it!”  Emma cried out.  ”Have to go to nurse Mommy.  Mommy gonna fix ears.  Unplug.  Mommy unplug ears.”  Emma came to me and waited expectantly.  ”Ohhhh, sweetheart.  I know.  I know,”  Emma said as she stood in front of me, waiting for me to magically remove her pain.  I massaged her ears and glands and throat, I encouraged her to blow her nose.  I showed her how to yawn with the hope that something, anything might work.  But it almost never does.  ”Mommy!  Please help me!”

I would if I could.  In a second.  But I can’t.  Nothing I do ever alleviates the pain.

Emma sat down next to me whimpering.  ”You have to call the doctor.  Go to new doctor.  But listen, that table is for babies.  You can’t sit on it.  That’s a baby’s table,” Emma said in reference to the metal table in the doctor’s office, just big enough for an infant.

The pain in Emma’s ears is an ongoing issue.  One that, I think, also scares her because the pain can be relentless.  I am left feeling impotent and helpless.  Last year Richard took her to a number of doctors and specialists.  There was her regular pediatrician, then the eyes, ears, nose and throat doctor several times and finally to yet another doctor, except that after examining her, they all said the same thing, “There’s nothing wrong with her.  She needs to stop pinching her nose and blowing.  Give her this antihistamine and see if that helps.”  And we were sent on our way.

When Emma was a toddler, she had chronic constipation.  I pursued any number of doctors and alternative “healers” with the hope that someone would be able to help her.  At the time, her constipation was my primary concern.  I remember going to a cranial-sacral therapist and pleading with him, “Help her with the constipation, just make her constipation better.”  I said the same thing to the QiGong Master and the homeopath and the GI specialist up at NY Presbyterian Hospital and her pediatrician and the developmental pediatrician, and the nutritionist, the DAN doctor, and, and.  We put her on the GFCF diet, we began giving her supplements, tinctures, omega 3 fish oils, epsom salt baths, but nothing we did helped.  Nothing.  After three years of hell, we fly up to Boston to see a  famous, GI Specialist.  It took me more than 6 months to secure an appointment.  She was given a colonoscopy and endoscopy.  The results showed scarring, inflammations, ulcerations, and I remember thinking – She’s five-years old.  How is this even possible?  And yet, it was.

We left Boston with photographs of her inflamed GI tract and a bottle of Miralax, something we’d tried many times in the past with no positive outcome.  It’s amazing what you’ll do when your child is suffering and in pain.  It’s amazing the things you will try, over and over, hoping that this time whatever it is will work, the leaps in logic you will take, the faith you will put in dubious practitioners all with the hope that maybe, just maybe one of them will do something to help your child.  As we flew home, I sat next to Emma and as the plane gained altitude I felt despair flood my body.  Despair that anyone would ever be able to do anything to help her.

Once more we were on our own to figure it out.  Eventually I came up with a “treatment” that did work.  I’m not going to write all about it now, but have provided links throughout this piece for older posts on all these subjects.

As with Emma’s constipation, something that I despaired would never change, and yet it did, her ears, over time will, most likely change too or her tolerance and ability to cope with the discomfort will increase.  Because of Emma’s ongoing issues with her ears, I am hyper-aware of my sensitivity to the changing air pressure.  Yesterday as I made my way home my ears were hurting, a kind of throbbing pain, a pressure in them that felt as though my ear drums might burst.  It was all I could do to get on the subway and head home.  Have I always been sensitive to the air pressure, but have learned how to block it out?  My guess is yes.  By the time I got home I was freezing cold, my skin ached and my ears felt as though any noise was too much.  Is this a version of what Emma experiences?  I can’t know that, but I know she’s in pain.  And I know that other than call the doctor and have her go in to see him, there aren’t many other things I can do.  But this feels wrong.  I should be able to make it better.  I’m her mother.  I’m suppose to be able to help her.  That’s my job.  That’s what Moms do.  Right?