Monthly Archives: January 2012

A Marathon

“It’s a marathon, not a sprint.”  This is a quote from Richard who said that to me one day many years ago.  At the time, we were leaving the office of one of the many doctors we had taken Emma to.  Those were the days when I still fully expected someone to produce the “secret thing” that would cure her.  Like some sort of closed, clandestine group, that if I just knew the secret password, Emma would be allowed to walk past the door labeled “autistic” and enter the one labeled “Neuro-typical” for better or worse.

I had a brief moment during my adolescence when I ran the mile, while my friends were running the 50 or 100 yard dash or sitting on the sidelines, munching on potato chips, I was doggedly doing laps around the quarter mile track at our local school.  I would set a pace for myself, not so fast that I was immediately out of breath, but not too slow that I was able to carry on a conversation.  And I’d stick to it.  Determinedly, often with my head down, listening to my breath, in, out, in, out.  Some days every step was a slog, as though I were wearing cement filled sneakers, my breath labored, every muscle ached, I would think about stopping before I’d hit the mile mark, but other days were bliss.  As a teenager I ran longer distances. I kept running for years just to experience those days when it all felt easy and right.

Just breathe.

For more on Emma’s journey through a childhood of autism, go to:   Emma’s Hope Book

A Moment of Levity

Yesterday, having successfully arrived in Denver and found our gate for the connecting flight to New York, an announcement told us of a short delay.  Emma, who was looking at her book – The Way I Feel – looked up and said, “Angry!  I am so angry!”  As she was on the page in the book describing anger, this was not surprising, however, the gentleman sitting next to her had no way of knowing the context for her words and so looked over at her and said, with an exasperated air, “Yeah, me too!”  Emma then scowled, to show off her angriest face, the man then scowled back before both of them began to laugh.  As I watched this interaction, I realized the man was with his wife and grown daughter, who were sitting directly across from us, both of whom were laughing so hard they had tears running down their cheeks.

Both our flights were, thankfully, uneventful.  We arrived in New York after 11:00PM where it was zero degrees with the wind chill, having left balmy Aspen, Colorado where it was in the upper forties.  Go figure.

For more on Emma’s journey through a childhood of autism, go to:   Emma’s Hope Book

Prepping Emma

We are flying back to New York City today.  As with most outings, we prepare her in advance.  Emma has become more aware of time in that she has been counting down the days until we fly home.  “Last day at the indoor pool,” she will say under her breath or “That’s it, no more skiing.  That was the last day of skiing.”

For the past week or so she has increasingly talked about going back to school, mentioning her friends and teacher and made references to things she wants to do in New York and the people she expects or would like to see.  Yesterday she helped clean up and gather her things to pack.  “Time to go back home,” she said at one point.  One year we were fortunate enough to be invited to fly in a friend’s private plane.  For the next few years Emma said, “Take just one plane,” with the hope that we would, once again, be able to fly straight from New York City to Aspen without stopping or going through the long lines of security and dealing with the large airports with their many delays and flight cancellations.

We walk her through the day by saying things like, “We leave on Tuesday, Em.  We’ll drive to the airport and say good bye to Granma.  Then we have to check our bags and go through security.  I will probably be pulled aside, so you’ll need to stay with Joe, Daddy and Nicky at the gate until I can join you.”  Often during this, Emma will join in, “We have to get on the airplane and fly up, up and then land at the other airport.”

We go through as much as we can with her, but there are inevitably issues which arise that we have no way of anticipating such as running into people we know, flights getting cancelled, luggage getting lost, alternative routes needing to be taken because of unforeseeable weather conditions, etc.  We do our best to make contingency plans, but fortunately Emma is a great traveler and most of these things she will take in stride.

I have seats all together today, so unless they change the aircraft on us, we should be able to sit altogether.

“We have to take a taxi,” Emma said, as I was going over our schedule this morning.  “Then we get to go through the tunnel and go home!” Emma said before running downstairs for one last morning of chocolate chip pancakes.

For more on Emma’s journey through a childhood of autism, go to:   Emma’s Hope Book.com