Yesterday the New York Times ran a front page piece entitled – Autistic and Seeking a Place in an Adult World. I am always so grateful when I see anything on autism, even when I am not told anything I don’t already know. I am particularly grateful when I see something on autism on the front page of the New York Times. For those of us who are parents of a child with autism, the looming question of what will happen when our child becomes an adult is something we do not have the luxury to ignore. Yet, the answer is not readily available to us, either. There is no road map by which we can look to. The future of our children is very much up in the air. It is a tricky balance keeping the fear at bay, while also being practical and realistic about ones child’s future and how we might ensure she is taken care of should she not be able to hold down a job and live independently.
My message of hope on The Hope Installation at the entrance to the High Line
The truth is we cannot know what Emma will be like in another eight years, all we can do is continue to work as intensely and extensively with her as we currently are.
So this evening when I come home from work, I will work on the word – does. After we spend an hour or so going over the word, both using it in hand written sentences and as well as typing sentences with it, we will also use the word verbally as when I lay out a frog, a boy, a bus and a dog and say, “Hand me the one who does not eat.” After we have done all of that we will play some games using the word “does” and finally we will go over a list of words she has already learned and review them. Somewhere during all of this – dinner will be prepared, Nic’s homework will get done, stories will be read and everyone will eventually go to bed.
For more on Emma’s journey through a childhood of autism, go to: www.EmmasHopeBook.com